A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
I love life's little challenges. I love problem solving and turning obstacles into opportunities. I love putting a positive spin on what would otherwise be a very negative situation. I've always done this, both in my personal and my working life. So, chronic disease really wasn't going to change my approach to finding a way … Continue reading The Non Negotiable Chronic Illness Rule
We all have moments in life when we hit a brick wall physically and perhaps mentally. It happens to the healthy and chronically ill alike. I remember in my "healthier" life, I'd get to the end of my working week and I'd be exhausted. It was a normal exhaustion. The kind where you just needed … Continue reading Running on Empty – Do Not Pass “Go”
I'm a week post L4/L5 laminectomy and decompression surgery. I've been home from hospital for 5 days and the road to recovery has begun. Well sort of. I really feel like I'm still in survival mode. My Surgeon tells me we did the right thing proceeding with this surgery. My spinal cord was severely compressed … Continue reading The Spinal Surgery Recovery Road
A week ago I posted a picture on Facebook of my first outing on my mobility scooter to our local Westfield Shopping Centre. It was a momentous occasion. The adrenalin of being able to move more than 50 metres kicked in and before we knew it 90 minutes had passed. It was a lovely afternoon and … Continue reading A Leap Too Far
One thing we can guarantee when living with a chronic disease is that we will always be changing plans. My extra cleaning activities this week have rendered my legs useless. I too easily forget that I'm only 10 weeks into a 6 month recovery from major surgery & that time frame is based on someone … Continue reading Change of Plans
I'm nearly 4 weeks post surgery and this time around seems so much harder than all the others. I think the main reason for that is because I was only 8 weeks post surgery on my broken leg when I had this rod inserted into the other leg. Having 2 legs with titanium rods from … Continue reading 4 week and counting
