A Peek Through My Window Of Pain

Pain can’t just be ignored. Disease can’t just be ignored. People with disease and pain can’t just be forgotten. I’m not alone in suffering horrific daily pain. So many in society struggle every day. Some manage to work or interact with the wider community in some way. Others like me, live a permanently reclusive life … Continue reading A Peek Through My Window Of Pain

You’ve Created A “Chronic Illness Career”….Don’t Forget To Have A Weekend!

When we think of Chronic Disease, we wouldn't usually have happy thoughts or find ourselves looking forward to a bright future. Fear, horror, uncertainty and grief are generally the normal response. However, the reality of living a chronic illness life can be quite liberating, as I've surprisingly found over the past 7 years. One of … Continue reading You’ve Created A “Chronic Illness Career”….Don’t Forget To Have A Weekend!

The Non Negotiable Chronic Illness Rule

I love life's little challenges. I love problem solving and turning obstacles into opportunities. I love putting a positive spin on what would otherwise be a very negative situation. I've always done this, both in my personal and my working life. So, chronic disease really wasn't going to change my approach to finding a way … Continue reading The Non Negotiable Chronic Illness Rule

“You Sound And Look So Well!!”

When we have chronic illness, our minds are quickly programmed to think about all the things we can no longer do. Doctors, allied health professionals, family and friends, can easily feed us messages which concur with our “I can’t do it” mindset. Don’t get me wrong, there is lots we can’t do when living with … Continue reading “You Sound And Look So Well!!”

Self Talk….”It’ll Do” And Other Chronic Illness Chat Lines

"It'll do" "It's good enough" "You're doing so well" " Good job" "Time to rest" "Not going to happen today" "Maybe tomorrow" In my previous life, by which I mean life before chronic illness, I always had a whole range of "self talk" language helping me achieve my goals. They were all positive, affirmative statements … Continue reading Self Talk….”It’ll Do” And Other Chronic Illness Chat Lines