Ultimately, it doesn’t matter what day it is.It matters that I make the most of every single day and make the moments within the day count. It matters that I don’t waste time being discontent about my circumstances.
As a patient advocate, I am often called, inspiring, motivating, and full of strength despite my adversities. The truth is that most days, I am just treading water.
There is always the temptation, when appointments or commitments are cancelled, to fill the time with other things. I know I can't, even though my head is always full of great ideas. My body is screaming at me. I have to listen to it.
There is something strangely calming about putting on the kettle, taking out a pretty china cup or mug, anticipating sitting in a comfy chair, and slowly sipping this hot delight.
One of the things I have always loved is Interior Design. After working crazy hours, when I was able to work, I would like nothing better than to spend the weekend at home. It’s always been my happy place. As a young girl I loved creating a new look in my bedroom regularly, using different … Continue reading You May Have a Physical Disability, But Your Home Doesn’t Need To Look Disabled Too!
(Warning: Some images in this blog post may be confronting) My approach to any life changing event always starts with making time to stop and think. It’s crucial to be deliberate and focused when dealing with change.
As a writer, it's a question I constantly ask myself. My aim is to ensure no one is left guessing and I reduce the risk of misunderstanding.
Have you looked at your Calendar at the start of a month and thought to yourself, ” What on earth was I thinking. I can’t possibly do all that!” I’m sure I’m not alone in this exclamation. As I scrolled through my calendar on my phone for the month ahead, I felt physically sick. It was … Continue reading Taking Control Over My Calendar Catastrophe …Time For Some Annual Leave!
(An Excerpt From Chapter Three of My Book, My Medical Musings, A Story of Love, Laughter, Faith and Hope: Living with a Rare Disease) Happiness is letting go of what you think your life is supposed to look like, and celebrating it for everything that it is” – Mandy Hale What an insightful quote! There … Continue reading Your Ticket To A New Life…..Let Go Of What You Think Life “Should” Look Like
Hi Everyone, I recently wrote a letter to the members of my support forum, Medical Musings with Friends . I wanted to apologise for being so quiet with replying to their comments on the forum, and not commenting on posts in general lately. I've managed to schedule daily segments to encourage community and discussion, but … Continue reading A Personal Letter from Sam….My Health and Life Update and an Apology.
My Medical Musings 