Chronic Illness Catastrophe Days – How Can We Survive These?

Ok, so the title probably sounds a little more dramatic than where I'm going with this.....but maybe not!! My regular readers will know I generally have a positive outlook on life, despite my disabling pain and crazy bone disease. I have accepted my circumstances, I love the things I can do and I don't stress … Continue reading Chronic Illness Catastrophe Days – How Can We Survive These?

The “Chronic Illness” Law of Diminishing Returns

My title might suggest a study in economics but rest assured it is not where I am heading with this. The Law of Diminishing Returns  Refers to a point at which the level of  benefits gained is less than the amount of money or energy invested. When you live with chronic illness, over time your … Continue reading The “Chronic Illness” Law of Diminishing Returns

“Where There’s A Will There’s A Way”….Is It Really That Easy?

I was loading my dishwasher this morning and fighting with a plate that refused to fit in. It wasn't really the plates fault. I was in severe pain and trying to get the task over as quickly as possible. I was also trying to fit way too much into this particular load.....as you do!! So … Continue reading “Where There’s A Will There’s A Way”….Is It Really That Easy?

Living A “Simply Special” Life

Living with chronic and disabling disease requires a complete change of lifestyle, a complete change of thinking. Gone are the days of waking up in the morning and jumping out of bed to have a quick breakfast, get showered and dressed, head to work or some fun planned day full of anticipated activities. Losses are … Continue reading Living A “Simply Special” Life

Dealing With The “Great Expectations” of A Medical Appointment

It happens to all of us with chronic illness. We look at our calendar and see that appointment date sitting there. Looming in the future. It offers such promise. We feel a little excited at the prospect of what may come from it. Hope. It offers hope. It's still 4 or 6 weeks away but … Continue reading Dealing With The “Great Expectations” of A Medical Appointment

“Do I Get Fries With That”? – Dealing With Chronic Illness Side Dishes

I thought my body couldn't possibly surprise me anymore. I thought I had a good handle on the reality of my diseases and on so many levels I do! I recently wrote a blog post called "Sending The 'What If's' of Life Packing"  It's all about focusing on "What Is" rather than "What If". So how … Continue reading “Do I Get Fries With That”? – Dealing With Chronic Illness Side Dishes