It’s Time To Let Go Of What You Think Life “Should” Look Like!

"Happiness is letting go of what you think your life is supposed to look like, and celebrating it for everything that it is" – Mandy Hale What an insightful quote! There is so much simplicity to it yet it is full of depth and wisdom. When we live with Chronic Illness, it's very easy to … Continue reading It’s Time To Let Go Of What You Think Life “Should” Look Like!

Love It Or Loathe It….Valentine’s Day Is Here Again

So, it’s here again…Valentine’s Day. Special for some, annoying for many and a day to completely ignore for others. What we can celebrate today are “love stories”. They don’t necessarily have to be romantic love stories. We can recount stories of love shown from friends, family, colleagues, acquaintances or even a stranger. We can just … Continue reading Love It Or Loathe It….Valentine’s Day Is Here Again

My Latest Podcast….A Pushing And Pacing Approach With Chronic Disability

I have a “Now or Never” philopsophy to life that sometimes gets me into trouble. Well, let’s face it….always gets me into trouble! Living with a physical progressive disability involves a lot of pain, lack of mobility and extreme fatigue every day. This kind of disease is constant. It doesn’t ebb and flow with flares. … Continue reading My Latest Podcast….A Pushing And Pacing Approach With Chronic Disability

“Where There’s A Will There’s A Way”….Is It Really That Easy?

I was loading my dishwasher this morning and fighting with a plate refusing to fit in. It wasn't really the plates fault. I was in severe lower back pain and trying to get the task over as quickly as possible. I was also trying to fit way too much into this particular load.....as you do!! … Continue reading “Where There’s A Will There’s A Way”….Is It Really That Easy?

Where’s The “Off The Charts” Rule Book?

(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading Where’s The “Off The Charts” Rule Book?