I was loading my dishwasher this morning and fighting with a plate that refused to fit in. It wasn't really the plates fault. I was in severe lower back pain and trying to get the task over as quickly as possible. I was also trying to fit way too much into this particular load.....as you … Continue reading “Where There’s A Will There’s A Way”….Is It Really That Easy?
(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading Where’s The “Off The Charts” Rule Book?
No one is exempt from waiting. As the world continues to grapple with a global health pandemic, we are all waiting. Waiting for it to be over. Waiting for a vaccine against Coronavirus to become available. Waiting for restrictions to be lifted. Waiting to see family and friends again, who have become separated from us … Continue reading Waiting, Waiting, Waiting!
One of the wonderful things living with a chronic disease has brought into my life, is finding new networks and friends in the chronic illness and blogging communities. Before becoming disabled and unable to work, I had no idea about blogging or online support forums. I never even had a Facebook account. Fast forward to … Continue reading It’s OK To Take An Online Break
I love turning over the calendar at the beginning of a new month. I have a pretty wall calendar in my study, so I look forward to revealing a new picture on the morning of the 1st day. It's a symbolic act in some regards, of saying goodbye to the old month, the good and … Continue reading The Ups And Downs Of Everyday Life Plus An Extraordinary Event!
When we have chronic illness, our minds are quickly programmed to think about all the things we can no longer do. Doctors, allied health professionals, family and friends, can easily feed us messages which concur with our "I can't do that" mindset. Don't get me wrong, there is lots we can't do when living with … Continue reading How Can I Do That ?
I'm tired.....so tired! I'm not depressed, I'm not sad, I'm just tired. My body is exhausted from fighting with itself daily. It can't even get a divorce from it's rare disease and walk away to a struggle free life. I'm just tired. Tired of medication. All the planning and administration, that goes into a meals … Continue reading It’s OK To Be Tired
How often do you tell yourself " I should be doing such and such" or " I'd better do this or that" ? We all do it. It's like we are programmed from birth to constantly have a catalogue of "should do, must do, better do", all filed in the front of our minds for … Continue reading “I Should, I Better, I Have To” …..No, You Really Don’t!!
It's on its way! There is no stopping it! Christmas is coming! This thought will either excite you or leave you trembling with trepidation. Or maybe the jury is out on how you feel, but generally the Christmas/ Holiday Season and the lead up to the big day, is forefront of mind during November. For … Continue reading It’s “Chronically” Close To Christmas
How many times have you written a "To Do List" this week? How many times have you looked at this list and felt like it's an impossible dream? How many times have you felt useless because you've only ticked off a few items? How many times have you looked at the list and felt like … Continue reading Can You Have A Chronic Illness And A “To Do” List?