A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
Many people with Chronic Illness require full time Carers. Often that role is filled by loved ones. Our husbands, wives, life partners, siblings, parents, children, even grandparents.Watching a loved one suffer is just so confronting. No one wants to see someone writhing in pain, or watch the person they're caring for lose their ability to … Continue reading Caring For The Carer
It’ll do”“It’s good enough”“You’re doing so well”” Good job”“Time to rest”“Not going to happen today”“Maybe tomorrow”In my previous life, by which I mean life before chronic illness, I always had a whole range of “self talk” language helping me achieve my goals.They were all positive, affirmative statements like;“you can do it, you’ve got this, keep … Continue reading Self Talk….”It’ll Do” And Other Chronic Illness Chat Lines
You know the feeling of completing a jigsaw puzzle only to find a piece is missing?It’s a devastating moment. Your stomach turns just a little. So much work, so much effort. So much anticipation of revealing a beautiful picture and this awaiting reward has been snatched away from you!Chronic and complex illness is so often … Continue reading Looking For The Missing Piece Of The Puzzle
No matter what is going on in my life there is always a constant certainty….A cup of tea fixes everything!There is something strangely calming about putting on the kettle, taking out a pretty china cup or mug, anticipating sitting in a comfy chair and slowly sipping this hot delight.It may be coffee, or another beverage … Continue reading A Cup Of Tea Fixes Everything!
We all know the saying; "When life gives you lemons, use them to make lemonade" It conjures up the notion of strength, determination, optimism, resourcefulness, resilience. All characteristics I've drawn on to deal with the "chronic illness lemons" continuously thrown at me. My lemons often feel like tennis balls in one of those practice machines. … Continue reading Let’s Make Some Lemonade!
Happiness is letting go of what you think your life is supposed to look like, and celebrating it for everything that it is” – Mandy Hale What an insightful quote! There is so much simplicity to it, yet it is full of depth and wisdom.When we live with Chronic Illness, it’s very easy to fall … Continue reading Your Ticket To A New Life…..(Let Go Of What You Think Life “Should” Look Like)
Sometimes laughter is the best medicine, especially when chronic illness turns the simple act of going to bed, into a circus act.I’m no poet, but as my husband and I recovered from last night’s antics over our morning coffee, our conversation ignited a tiny bit of poetic creativity:As I lay me down to sleepMy naughty … Continue reading As I Lay Me Down To Sleep…. Who Am I Kidding!
If at first you don't succeed….. Christmas Day Crisis Christmas Day was pretty much a right off for me. I was so unwell with a stoma blockage which caused many issues, including my pain medication not being absorbed. On Christmas Day I always like to wear a new outfit. It's been a long time tradition … Continue reading “If At First You Don’t Succeed….”
You know the feeling of needing a holiday. Time away from your own life realities, if even for a few days. You are probably exhausted from work, life events, health issues, end of year fatigue and numerous other reasons. My list of reasons for needing a holiday is not short! A Year To Forget 2021 … Continue reading A Holiday At Home – My Very Own Bed and Breakfast
Every now and again it’s really good to stop and take stock. Stress is the last thing those of us with Chronic Illness need. It only enhances our pain and symptoms. Time To Step Aside For A While As my readers know my health continues to deteriorate and as a result I'm incredibly exhausted. I … Continue reading Stepping Aside For September
My Medical Musings 