My Latest Podcast….A Pushing And Pacing Approach With Chronic Disability

I have a “Now or Never” philopsophy to life that sometimes gets me into trouble. Well, let’s face it….always gets me into trouble! Living with a physical progressive disability involves a lot of pain, lack of mobility and extreme fatigue every day. This kind of disease is constant. It doesn’t ebb and flow with flares. … Continue reading My Latest Podcast….A Pushing And Pacing Approach With Chronic Disability

“Where There’s A Will There’s A Way”….Is It Really That Easy?

I was loading my dishwasher this morning and fighting with a plate refusing to fit in. It wasn't really the plates fault. I was in severe lower back pain and trying to get the task over as quickly as possible. I was also trying to fit way too much into this particular load.....as you do!! … Continue reading “Where There’s A Will There’s A Way”….Is It Really That Easy?

Where’s The “Off The Charts” Rule Book?

(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading Where’s The “Off The Charts” Rule Book?

It’s OK To Take An Online Break

One of the wonderful things living with a chronic disease has brought into my life, is finding new networks and friends in the chronic illness and blogging communities. Before becoming disabled and unable to work, I had no idea about blogging or online support forums. I never even had a Facebook account. Fast forward to … Continue reading It’s OK To Take An Online Break

The Ups And Downs Of Everyday Life Plus An Extraordinary Event!

I love turning over the calendar at the beginning of a new month. I have a pretty wall calendar in my study, so I look forward to revealing a new picture on the morning of the 1st day. It's a symbolic act in some regards, of saying goodbye to the old month, the good and … Continue reading The Ups And Downs Of Everyday Life Plus An Extraordinary Event!