Over the past couple of weeks I’ve been reading and editing some of my older blog posts. I’m no where near finished but it’s been such a worthwhile exercise so far. I’ve enjoyed reliving my journey, and discovering how much my writing style has changed, since I started blogging over 6 years ago. I’ve also … Continue reading My Mini Musings
Every now and again it's really good to stop and take stock. The end of the year, and the lead up to Christmas, is a perfect time to let go of a few things and make some space to slow down a little. After all, it is the season of "Comfort and Peace", as opposed … Continue reading Blogging Off Until After Christmas!
I have a “Now or Never” philopsophy to life that sometimes gets me into trouble. Well, let’s face it….always gets me into trouble! Living with a physical progressive disability involves a lot of pain, lack of mobility and extreme fatigue every day. This kind of disease is constant. It doesn’t ebb and flow with flares. … Continue reading My Latest Podcast….A Pushing And Pacing Approach With Chronic Disability
I was loading my dishwasher this morning and fighting with a plate refusing to fit in. It wasn't really the plates fault. I was in severe lower back pain and trying to get the task over as quickly as possible. I was also trying to fit way too much into this particular load.....as you do!! … Continue reading “Where There’s A Will There’s A Way”….Is It Really That Easy?
(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading Where’s The “Off The Charts” Rule Book?
No one is exempt from waiting. As the world continues to grapple with a global health pandemic, we are all waiting. Waiting for it to be over. Waiting for a vaccine against Coronavirus to become available. Waiting for restrictions to be lifted. Waiting to see family and friends again, who have become separated from us … Continue reading Waiting, Waiting, Waiting!
One of the wonderful things living with a chronic disease has brought into my life, is finding new networks and friends in the chronic illness and blogging communities. Before becoming disabled and unable to work, I had no idea about blogging or online support forums. I never even had a Facebook account. Fast forward to … Continue reading It’s OK To Take An Online Break
I love turning over the calendar at the beginning of a new month. I have a pretty wall calendar in my study, so I look forward to revealing a new picture on the morning of the 1st day. It's a symbolic act in some regards, of saying goodbye to the old month, the good and … Continue reading The Ups And Downs Of Everyday Life Plus An Extraordinary Event!
When we have chronic illness, our minds are quickly programmed to think about all the things we can no longer do. Doctors, allied health professionals, family and friends, can easily feed us messages which concur with our "I can't do that" mindset. Don't get me wrong, there is lots we can't do when living with … Continue reading How Can I Do That ?
I'm tired.....so tired! I'm not depressed, I'm not sad, I'm just tired. My body is exhausted from fighting with itself daily. It can't even get a divorce from it's rare disease and walk away to a struggle free life. I'm just tired. Tired of medication. All the planning and administration, that goes into a meals … Continue reading It’s OK To Be Tired