A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
Every now and again it’s really good to stop and take stock. Stress is the last thing those of us with Chronic Illness need. It only enhances our pain and symptoms. Time To Step Aside For A While As my readers know my health continues to deteriorate and as a result I'm incredibly exhausted. I … Continue reading Stepping Aside For September
Life isn't always fun. It will always have highs and lows. Times when we are ecstatic. Times when we are happy. Times when we are content. Times when we are melancholy. Times when we are bored. Times when we just have to deal with drudgery. I'm sitting in the "dealing with drudgery" category at the … Continue reading Dealing With Daily Drudgery
One of the things I have always loved is Interior Design. After working crazy hours, when I was able to work, I would like nothing better than to spend the weekend at home. It's always been my happy place. As a young girl I loved creating a new look in my bedroom regularly, using different … Continue reading Interior “Disability” Design
Pain can’t just be ignored. Disease can’t just be ignored. People with disease and pain can’t just be forgotten. I’m not alone in suffering horrific daily pain. So many in society struggle every day. Some manage to work or interact with the wider community in some way. Others like me, live a permanently reclusive life … Continue reading A Peek Through My Window Of Pain
When we think of Chronic Disease, we wouldn't usually have happy thoughts or find ourselves looking forward to a bright future. Fear, horror, uncertainty and grief are generally the normal response. However, the reality of living a chronic illness life can be quite liberating, as I've surprisingly found over the past 7 years. One of … Continue reading You’ve Created A “Chronic Illness Career”….Don’t Forget To Have A Weekend!
I love life's little challenges. I love problem solving and turning obstacles into opportunities. I love putting a positive spin on what would otherwise be a very negative situation. I've always done this, both in my personal and my working life. So, chronic disease really wasn't going to change my approach to finding a way … Continue reading The Non Negotiable Chronic Illness Rule
When we have chronic illness, our minds are quickly programmed to think about all the things we can no longer do. Doctors, allied health professionals, family and friends, can easily feed us messages which concur with our “I can’t do it” mindset. Don’t get me wrong, there is lots we can’t do when living with … Continue reading “You Sound And Look So Well!!”
"It'll do" "It's good enough" "You're doing so well" " Good job" "Time to rest" "Not going to happen today" "Maybe tomorrow" In my previous life, by which I mean life before chronic illness, I always had a whole range of "self talk" language helping me achieve my goals. They were all positive, affirmative statements … Continue reading Self Talk….”It’ll Do” And Other Chronic Illness Chat Lines
You’re probably wondering what on earth the title to this blog post means. How can you be “Blissfully Broken”? No I haven’t gone mad…..ok, maybe just a little! I’m musing about my life as it stands today. When chronic illness is complex it’s easy to feel overwhelmed. We can be diagnosed with so many adjunct … Continue reading Blissfully Broken
This week the world is mourning the death of Prince Philip, Duke of Edinburgh. Closer to home, I am mourning the death of my precious Dad. The Royal Family and I are worlds apart on so many levels, yet grief is something no one escapes in this life. At the end of the day we … Continue reading As The World Mourns…
