You’ve Created A “Chronic Illness Career”….Don’t Forget To Have A Weekend!

When we think of Chronic Disease, we wouldn't usually have happy thoughts or find ourselves looking forward to a bright future. Fear, horror, uncertainty and grief are generally the normal response. However, the reality of living a chronic illness life can be quite liberating, as I've surprisingly found over the past 7 years. One of … Continue reading You’ve Created A “Chronic Illness Career”….Don’t Forget To Have A Weekend!

The Non Negotiable Chronic Illness Rule

I love life's little challenges. I love problem solving and turning obstacles into opportunities. I love putting a positive spin on what would otherwise be a very negative situation. I've always done this, both in my personal and my working life. So, chronic disease really wasn't going to change my approach to finding a way … Continue reading The Non Negotiable Chronic Illness Rule

“You Sound And Look So Well!!”

When we have chronic illness, our minds are quickly programmed to think about all the things we can no longer do. Doctors, allied health professionals, family and friends, can easily feed us messages which concur with our “I can’t do it” mindset. Don’t get me wrong, there is lots we can’t do when living with … Continue reading “You Sound And Look So Well!!”

Self Talk….”It’ll Do” And Other Chronic Illness Chat Lines

"It'll do" "It's good enough" "You're doing so well" " Good job" "Time to rest" "Not going to happen today" "Maybe tomorrow" In my previous life, by which I mean life before chronic illness, I always had a whole range of "self talk" language helping me achieve my goals. They were all positive, affirmative statements … Continue reading Self Talk….”It’ll Do” And Other Chronic Illness Chat Lines

It’s Time To Let Go Of What You Think Life “Should” Look Like!

"Happiness is letting go of what you think your life is supposed to look like, and celebrating it for everything that it is" – Mandy Hale What an insightful quote! There is so much simplicity to it yet it is full of depth and wisdom. When we live with Chronic Illness, it's very easy to … Continue reading It’s Time To Let Go Of What You Think Life “Should” Look Like!

My Latest Podcast….A Pushing And Pacing Approach With Chronic Disability

I have a “Now or Never” philopsophy to life that sometimes gets me into trouble. Well, let’s face it….always gets me into trouble! Living with a physical progressive disability involves a lot of pain, lack of mobility and extreme fatigue every day. This kind of disease is constant. It doesn’t ebb and flow with flares. … Continue reading My Latest Podcast….A Pushing And Pacing Approach With Chronic Disability