I never thought I would need a Go Fund me account but I realise there are times in our lives when we simply need to ask for help from a "village" of people, who are each able to assist just a little, so we can raise just enough.
Every now and again, I wake up to a "Chronic Illness Catastrophe Day." These are days that happen to all of us with chronic illness, and I'm on a quest to work out how best to manage them once and for all!
"My inbuilt professional persona began to surface as I looked at the phone next to me on the bed. It was inevitable. I would answer this call with a bright and upbeat greeting, no matter the real picture of searing pain and chronic disease."
Everyone wants to present the best version of themselves. We all have an image of how we’d like to look and often the image in our mind, falls short of the reality we see in the mirror.Of course some mirrors give a very distorted view. I have in my home what I call “naughty and … Continue reading Body Image….A Love Hate Relationship
When we live with chronic illness, the concept of continuous improvement seems almost ridiculous doesn’t it. But is it?
Asking “what if” can be paralyzing, even soul destroying. It can cause you to worry about a future scenario which may never happen. It can cause you to miss out on real joys in your life today.
For two years, before medically retiring, I was still holding out hope of being able to return to work eventually, despite being on Income Protection and battling one health hurdle after the other. The realist in me knew I was facing a very different life, as I began to lose my ability to walk any … Continue reading The Best Disability Advice I Ever Received Was Not What I Expected!
I don’t want to be a prisoner to my disease. I want to scale whatever heights I can safely push, and ultimately I’m the only one who can decide my limits.
Every now and again it’s really good to stop and take stock.The end of the year, and the lead up to Christmas, is a perfect time to let go of a few things and make some space to slow down a little.After all, it is supposed to be the season of “Comfort and Peace”, as … Continue reading Blogging Off Until 2023…But First A Look At My Writing Year In Review
There is something good in every day. Is there? Is that even a possible concept for those of us who have chronic diseases? The initial response from the chronic illness community is likely to be a resounding "No". Pain, procedures, lack of sleep, lack of understanding, countless medical appointments and tests, chronic fatigue, lack of … Continue reading There is Something Good in Every Day…Even With Chronic Disease
My Medical Musings 