Swapping Sleeping Sides After 28 Years… Did We Achieve it?

You know it's ok to sometimes admit defeat. In fact, it often takes more strength of character and courage to do so than to continue with a situation, a circumstance that isn't right for you

A “Newsy” Podcast Episode… A First For Us, Plus A Beautiful Blessing Received Many Years Ago

In this podcast episode, I tell the full story of why we have needed to fund raise. I discuss the overall experience of stepping outside of our comfort zone and the varying reactions of others. Plus, the meaning behind a simple phrase, told to me by a dear old lady when I was sweet 16, that connects this entire new journey.

A Fundraising Newsletter

Hi everyone, For those who haven't been following my latest "Chronic Illness" adventure, five days ago, my husband and I launched a personal fundraising page. We never in our lives thought we would do something like this, but with the encouragement of friends and family, we decided to take a leap of faith. If you'd … Continue reading A Fundraising Newsletter

I Never Imagined I Would Have To Do This

I never thought I would need a Go Fund me account but I realise there are times in our lives when we simply need to ask for help from a "village" of people, who are each able to assist just a little, so we can raise just enough.

Conquering A “Chronic Illness Catastrophe Day”

Every now and again, I wake up to a "Chronic Illness Catastrophe Day." These are days that happen to all of us with chronic illness, and I'm on a quest to work out how best to manage them once and for all!

A Heartfelt Letter To Whom It May Concern … I Need To Get My Life Back!

Sometimes life with chronic illness can be overwhelming. It's not always because of your disease either. It's often all the appointments, including doctors, allied health professionals, equipment trials, dealing with government departments, routine tests and procedures, etc. It can become a full-time job. Your body becomes your business, your place of work, and you can … Continue reading A Heartfelt Letter To Whom It May Concern … I Need To Get My Life Back!

Don’t Miss the Mini Miracles and Unexpected Gifts in Your Life.

Sometimes, all I need is a glimmer of hope in the form of mini miracles.Living with a chronic disease reminds me of some of my previous plane trips. I’d start off full of nervous anticipation, with a little fear of what lay ahead once on board. There were some smooth passages, and then all of … Continue reading Don’t Miss the Mini Miracles and Unexpected Gifts in Your Life.