A week ago I had yet another spinal MRI, my second in three months. Something new happened on the left side of my lumbar spine a few weeks ago, which caused a massive increase in my disability. I can no longer stand for more than 5 or 10 mins at a time, even using aides, … Continue reading An Honest Chat With My Specialist….It Just Can’t Be Fixed!
I received a long awaited phone call last week from a Qld Hospital Research Department, inviting me to take part in a research project that is aiming to discover what genes or new mutations of a known gene I have, that may be the cause of my disease. This was something my Endocrinologist had put me forward … Continue reading It’s all about the Genes! I’m about to become a Guinea Pig!
I have to go to the dentist next week and while my Dentist is lovely I really hate having to go. I'm not sure which is worse, the invasion in my mouth or whether the fact she always finds something catastrophically wrong with my teeth (thanks to the idiopathic nature of my disease) or the scary bill at the end … Continue reading Health Insurance….the joy of being on hold!
In 2010 I was in my mid 40’s, at the height of my career as an Executive Manager in a major bank. In April of 2010, I was getting ready to take 6 weeks long service leave to spend some quality time with my beautiful husband. We were going on a road trip, through South … Continue reading My Story