How do you continue to live life to the full when your health limits everything you do? How do you cope with waiting for a reprieve in symptoms when the reality is, no reprieve is coming? I’m not going to say there are easy answers to these questions because there definitely are not. It’s hard. … Continue reading A Full And Fulfilled Chronic Illness Life
I can’t change my health situation but I can always change my mindset and I have deliberately choosen to embrace my new life.
When you've lived with chronic disease for a while, you'll inevitably arrive at a stage in your journey, where you feel you've come full circle. Perhaps, you feel you are constantly going around in circles. This is often the experience many patients have when first seeking a diagnosis. It can be a confusing and distressing … Continue reading Riding The Chronic Illness Carousel
When you've lived with Chronic Illness for a number of years, at some point, you adjust to a new way of living. You eventually find a new norm. While you might expect a few highs, lows and some disease flares along the way, generally life evolves into a settled and comfortable pattern. Until it suddenly, … Continue reading “Would You Like A Second Opinion?”… Surreal And Scary!
I’m currently in an extreme pain cycle (that’s a civilized way of putting it) My bone disease is progressing and my entire skeleton seems to be under attack. Put plainly, I hurt! Pain Is So Personal Pain is such a highly personal thing and while we can all relate to varying levels of high pain, … Continue reading Pain Is So Personal
Everyone wants to present the best version of themselves. We all have an image of how we'd like to look and often the image in our minds, falls short of the reality we see in the mirror. Of course some mirrors give a very distorted view. I have in my home what I call "nice … Continue reading A “Weighty” Conversation
You know that feeling when you are completing a jigsaw puzzle only to find that a piece is missing? It’s a devastating moment. Your stomach turns just a little. All that work, all that effort, all that anticipation of a final outcome. A completed picture was the awaiting reward but it’s been snatched away from … Continue reading Finding Your Way Through A Chronic Illness Conundrum