I would have thought that being disabled, and housebound, life would go slowly. I'd have thought each day would drag and each hour would leave me wondering how to fill my time. Ha...How Wrong Was I !! How is it days, weeks, months and even years keep speeding by? What have I done to make … Continue reading Loving “Moments” Of My Chronic Illness Life
One thing no one wants, when you have Chronic Illness, is another diagnosis to add to the ever-growing list. There are times though when a new diagnosis brings a renewed sense of hope, relief and determination to fight on. After spending 8 days in hospital following my recent repeat spinal surgery, I returned home feeling … Continue reading So Now I’m Insufficient….In An Adrenal Kind Of Way!
Only 3 months ago I was writing about how "surgery can't come soon enough" We knew even then there was a risk of surgery failing. We knew my bone disease was behaving erratically and had a mind of its own. Despite the risks of surgery failure we just didn't have a choice. We had to … Continue reading Here We Go Again…..Spinal Surgery Take Two!
There are times in my chronic illness adventure when I'm not sure what my next move should be. Symptoms worsen, test results reveal disease progression and my energy and desire to fight wanes. My medical team is very concerned but also cautious. Intervention can make things worse and every time I have surgery I'm never … Continue reading Chronic Illness Chess – Attack or Surrender
I have a "Now or Never" philopsophy to life that sometimes gets me into trouble. Well, let's face it....always gets me into trouble! Living with a physical progressive disability involves a lot of pain, lack of mobility and extreme fatigue every day. This kind of disease is constant. It doesn't ebb and flow with flares. … Continue reading Pushing And Pacing With A Progressive Chronic Disease….Courageous Or Stupid?
I'm a week post L4/L5 laminectomy and decompression surgery. I've been home from hospital for 5 days and the road to recovery has begun. Well sort of. I really feel like I'm still in survival mode. My Surgeon tells me we did the right thing proceeding with this surgery. My spinal cord was severely compressed … Continue reading The Spinal Surgery Recovery Road
My Spinal Specialist appointment went well. I think that's the best description under the circumstances. I managed to walk to his office using my walker and I thought I was doing well. As I entered his room I smiled as brightly as possible. However the pain in my eyes and my inability to move faster … Continue reading Surgery Can’t Come Soon Enough!