A New Day Will Dawn Every Morning….Clinging to Hope

Every morning I wake up thinking, “Today will be a better day” Everyday, for more years than I care to count, I finish the day feeling battle weary. Every night I close my eyes to sleep, clinging to the hope that sleep will be renewing and I will wake up feeling refreshed. Every night I … Continue reading A New Day Will Dawn Every Morning….Clinging to Hope

The Twists And Turns Of Chronic Illness

Life isn't always straight forward. A bit of a cliche I know, but it's so true! 3 years ago I sat in pain with 2 broken legs, recovering from 2 major surgeries 8 weeks apart. I was facing a future filled with so many "unknown" elements. At that moment, "Life isn't straight forward", is what came … Continue reading The Twists And Turns Of Chronic Illness

Loving “Moments” Of My Chronic Illness Life

I would have thought that being disabled, and housebound, life would go slowly. I'd have thought each day would drag and each hour would leave me wondering how to fill my time. Ha...How Wrong Was I !! How is it days, weeks, months and even years keep speeding by? What have I done to make … Continue reading Loving “Moments” Of My Chronic Illness Life

So Now I’m Insufficient….In An Adrenal Kind Of Way!

One thing no one wants, when you have Chronic Illness, is another diagnosis to add to the ever-growing list. There are times though when a new diagnosis brings a renewed sense of hope, relief and determination to fight on. After spending 8 days in hospital following my recent repeat spinal surgery, I returned home feeling … Continue reading So Now I’m Insufficient….In An Adrenal Kind Of Way!

Here We Go Again…..Spinal Surgery Take Two!

Only 3 months ago I was writing about how "surgery can't come soon enough" We knew even then there was a risk of surgery failing. We knew my bone disease was behaving erratically and had a mind of its own. Despite the risks of surgery failure we just didn't have a choice. We had to … Continue reading Here We Go Again…..Spinal Surgery Take Two!

Chronic Illness Chess – Attack or Surrender

There are times in my chronic illness adventure when I'm not sure what my next move should be. Symptoms worsen, test results reveal disease progression and my energy and desire to fight wanes. My medical team is very concerned but also cautious. Intervention can make things worse and every time I have surgery I'm never … Continue reading Chronic Illness Chess – Attack or Surrender