As a patient advocate, I am often called, inspiring, motivating, and full of strength despite my adversities. The truth is that most days, I am just treading water.
Just Treading Water
Category: Bone DIsease
Reflecting on Resilience, Courage, and My Chronic Illness Journey.
What I didn’t realise was how much resilience and courage I would need to publish my memoirs and even just to blog about my chronic illness journey. I knew I wanted to share my story to help others, but to do so really does make you vulnerable.
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Silver Linings, Despite Difficulties
"The quiet words spoken to us that morning brought amazing peace and linked beautifully into the promise of a safe path for our future."
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Embracing The Chronic Disease Circle of Change
(Warning: Some images in this blog post may be confronting) My approach to any life changing event always starts with making time to stop and think. It’s crucial to be deliberate and focused when dealing with change.
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Taking Time to Reflect
Turning off Netflix and listening to the silence filling the room, can be so relaxing. Suddenly the birds outside can be heard tweeting, rather than Twitter chirping at you with a notification on your phone.
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Our Tapestry Of Life – Another New Year Begins
2023 is here!A new year awaits. Will it be a good year, a difficult year, a happy year, a sad year?One thing is certain, none of us really know.As I look back over my life, every year has had highs and lows. Mostly, my life has been exciting and exhilarating. Yes, even the past 12 … Continue reading Our Tapestry Of Life – Another New Year Begins
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A New Year Promise…Hope In The Midst of Delight and Despair
“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.” Jeremiah 29 v 11 ( New International Version) I love this verse from the Bible. I can’t think of a better verse to read and muse on as we … Continue reading A New Year Promise…Hope In The Midst of Delight and Despair
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Have Yourself A Merry Little “Chronic Illness” Christmas!
As Christmas Day fast approaches I imagine most of us, in the chronic illness community, are musing about what we want to realistically achieve over the holiday period. For those of us with chronic disease it can be an incredibly overwhelming time. Just trying to be happy for others, when your body is screaming at … Continue reading Have Yourself A Merry Little “Chronic Illness” Christmas!
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Christmas Connections
I’ve been indulging in Christmas Movies over the past couple of weeks. They've been the perfect distraction from my disease progression and escalating pain levels. They never used to be my thing but the more I watch, the more I fall in love with the beautiful locations they are filmed in, the Christmas scenes and … Continue reading Christmas Connections
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Dancing To The Beat of My Own Drum..Chronic Illness Style!
I don’t generally suffer from anxiety. It doesn’t mean I don’t get stressed. Of course I do. We all do. My overall health situation can cause significant stress, on occasions, but I accept it is what it is, and I’m continually finding ways to adjust my life to accomodate it. Pain, when it’s at unrelenting … Continue reading Dancing To The Beat of My Own Drum..Chronic Illness Style!
My Medical Musings 