I'm so excited to share with you my interview as a Guest on "I Am Not My Pain Podcast. This is part one, of a two part interview. I was so honoured to be invited by Melissa to talk about my health story, my blog, my book, my forum and even more importantly, how I … Continue reading My Interview as a Guest on, “I Am Not My Pain Podcast” …..With Host Melissa Adams
Some dates are forever etched in our memories. I have a few but there are two I will never forget. October 6th 2014 is the first. It was the day my femur broke. It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that … Continue reading A Year Later…One Step, Two Steps…Will There Be A Third?
(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading My Four Day Rule
I awoke to the sound of rain pouring down, and the sky was as black as the ace of spades. My body, as is normal, was screaming at me, as lying in bed for 6 hours causes every joint to seize, and my broken bones burn. I slowly twisted my legs off the bed and … Continue reading “Grief is the price we pay for love.” Queen Elizabeth II
There is something good in every day. Is there? Is that even a possible concept for those of us who have chronic diseases? The initial response from the chronic illness community is likely to be a resounding "No". Pain, procedures, lack of sleep, lack of understanding, countless medical appointments and tests, chronic fatigue, lack of … Continue reading There is Something Good in Every Day…Even With Chronic Disease
"I'm going to be your clown for the day" These are the words my husband greeted me with, as I munched on my cornflakes. I knew instantly why, but I imagine his statement will require some explaining. I had a crazy idea I could take on a bigger workload. As my regular readers will know, … Continue reading My Chronic Illness Clown For The Day!
(This is an excerpt from Chapter Two of my book, My Medical Musings, A Story of Love, Laughter, Faith and Hope, available as an e-book or paperback through Amazon or ImagineWe Publishers. It also provides an update, as promised, to an earlier blog, "What Sam Did Next") How do you continue to live life to … Continue reading Live Your Best Life….And What Did Sam Do Next?
How many times have you written a "To Do List" this week?How many times have you looked at the list and felt like it's an impossible dream?How many times have you felt useless because you've only ticked off a few items?How many times have you looked at the list and felt like it's been taunting … Continue reading Can You Have A Chronic Illness And A “To Do List”?
Growing up I loved the Susan Coolidge novels, "What Katy Did" , "What Katy Did At School" and What Katy Did Next". Katy had way too many good ideas, which generally got her into trouble, but things always worked out well in the end. There was definitely always a morale to the story. I think … Continue reading What Sam Did Next…
Getting to the next level always requires ending something, leaving it behind, and moving on. Growth itself demands that we move on. Without the ability to end things, people stay stuck, never becoming who they are meant to be, never accomplishing all that their talents and abilities should afford them.”Henry Cloud, Necessary Endings I love … Continue reading Staying Stuck or Growing? (A Sneak Peek Chapter from my Book)
My Medical Musings 