A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
We all know the saying; "When life gives you lemons, use them to make lemonade" It conjures up the notion of strength, determination, optimism, resourcefulness, resilience. All characteristics I've drawn on to deal with the "chronic illness lemons" continuously thrown at me. My lemons often feel like tennis balls in one of those practice machines. … Continue reading Let’s Make Some Lemonade!
As a New Year starts it’s usual to think about the year ahead and set goals, both for your personal and business life, and perhaps plan holidays or other adventures. I did for years. It’s summer in Australia and generally, Christmas to the end of January, is known as the holiday season. Schools are closed … Continue reading The Dreaded New Year Question!!
As Christmas Day fast approaches I imagine most of us, in the chronic illness community, are musing about what we want to realistically achieve over the holiday period. For those of us with Chronic Disease it can be an incredibly overwhelming time. Just trying to be happy for others, when your body is screaming at … Continue reading Have Yourself A Merry Little “Chronic” Christmas
I was once called "Stoic" when I was working, because of the way I got on with my chronic health issues without fuss. I was always cheerful, smiling and putting others first. I kept working full time with this stoic attitude and nature, until my body physically would no longer let me. Even with a … Continue reading Stoic or Stupid?
“Tis the season to be jolly, fa la la la la, la la la la” Is it? Do you feel jolly or do you feel exhausted, stressed? Do you feel overwhelmed by your chronic illness, which refuses to understand Christmas is fast approaching, and you really could do with feeling healthy for the festive season? … Continue reading Decking The Halls With Comfort And Joy
I’ve been indulging in Christmas Movies over the past couple of weeks. They've been the perfect distraction from my recent hospital stay and disease progression. They have never really been my thing but the more I watch, the more I fall in love with the beautiful locations they are filmed in, the Christmas scenes and … Continue reading Christmas Connections
Chronic Illness takes many things from us. Some aspects of our diseases we can't control but there are some we need to find a way to overcome. Over the past 9 weeks I have felt like I was in captivity. I've felt like a prisoner in a body determined to suffocate me. I've even woken … Continue reading You’re Only A Prisoner If You Lose Hope
Some dates are forever etched in our memories. I have a few but one is a day I will never forget October 6th 2014. It was the day my femur broke. It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that even Specialists … Continue reading One Step, Two Steps…..Will There Be A Third?
On the 14th October 2021, after 5 weeks bed bound in hospital, due to my “acute” spinal collapse and bone disease progression, I was finally allowed home. I was sent home via ambulance as my condition hadn't improved. I still couldn't sit or stand for more than 2 minutes at a time. Walking with a … Continue reading Overwhelmed and Under Prepared
Some challenges in life hit us so hard, as we never saw them coming. Such challenges don't allow us the luxury of preparing ahead of time. They give no warning. They simply arrive! My "acute" spinal collapse , would prove to be one of the hardest challenges I have ever faced, and I've documented a … Continue reading Hard Work In Hospital
My Medical Musings 