I’ve Launched My Podcast!!….Introducing “Medical Musings With Sam”

Hi Everyone ,I've done it...I've taken a leap of faith and started my Podcast.My new Podcast, Medical Musings with Sam, is now live on Spotify, Podcasters and my host app, Anchor.It includes the trailer and Season One with five full episodes. I'm so looking forward to sharing an audible version of my most popular blogs … Continue reading I’ve Launched My Podcast!!….Introducing “Medical Musings With Sam”

Healing Comes In Many Forms…..Even With A Progressive Disease

Some dates are forever etched in our memories. I have a few but one is a day I will never forget October 6th 2014. It’s the day my femur broke.   It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that even Specialists would … Continue reading Healing Comes In Many Forms…..Even With A Progressive Disease

Spinal Shenanigans….It’s A Little Complicated

It's official! My spine is full of shenanigans and my Specialists can't quite find a way to fix it, not without creating even more shenanigans. My spine is completely unstable at l4/l5. L3/l4 isn't far behind it but the pain I experience from the severity of the instability at l4/l5, smothers pain I would be … Continue reading Spinal Shenanigans….It’s A Little Complicated

Where’s The “Off The Charts” Rule Book?

(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading Where’s The “Off The Charts” Rule Book?

The Twists And Turns of Chronic Illness Life

Life isn't always straight forward. A bit of a cliche I know, but it's so true! 3 years ago I sat in pain with 2 broken legs, recovering from 2 major surgeries 8 weeks apart. I was facing a future filled with so many "unknown" elements. At that moment, "Life isn't straight forward", is what came … Continue reading The Twists And Turns of Chronic Illness Life

The “Chronic Illness” Law of Diminishing Returns

My title might suggest a study in economics but rest assured it is not where I am heading with this. The Law of Diminishing Returns Refers to a point at which the level of  benefits gained is less than the amount of money or energy invested. When you live with chronic illness, over time your expectations, … Continue reading The “Chronic Illness” Law of Diminishing Returns

A Carousel Of Memories And Moments

One of my earliest childhood memories is being on the passenger ship "Aurelia". I was 3 years of age and embarking on a journey that would change the entire course of my life. I was migrating from the United Kingdom (London) to Fremantle, Western Australia with my parents and my older brother. Fuzzy and Special Memories … Continue reading A Carousel Of Memories And Moments

Caring For The Carer

Many people with Chronic Illness require full time Carers. Often that role is filled by loved ones. Our husbands, wives, life partners, siblings, parents, children, even grandparents. Watching a loved one suffer is just so confronting. No one wants to see someone writhing in pain, or watch the person they're caring for lose their ability … Continue reading Caring For The Carer