A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
Snap, crackle and pop…and just like that I can't move my back. I've been doing reasonably well so it's disappointing when my broken body decides to break a little more, but this is life with a crazy bone disease. I can't thank my beautiful husband enough for his love and support. When you can't do … Continue reading Snap, Crackle, Pop…Caring Love Never Stops!
No matter what is going on in my life there is always a constant certainty….A cup of tea fixes everything!There is something strangely calming about putting on the kettle, taking out a pretty china cup or mug, anticipating sitting in a comfy chair and slowly sipping this hot delight.It may be coffee, or another beverage … Continue reading A Cup Of Tea Fixes Everything!
A while ago on my forum Medical Musings with Friends , I posted a segment called “Any Questions?” I wanted to invite my forum members to ask me anything about my life, my disease, my writing etc. It was an "open book" kind of segment. The recurring question, or theme to the questions, was; “how do you … Continue reading Question Time With Friends
You may read this blog post title with a sense of bewilderment. You may be wondering where on earth am I going with this and what on earth has any of it got to do with chronic disease and disability! Well, in my world these three things, Carparks, a Recliner and a Telephone, have all … Continue reading Carparks, A Recliner And A Telephone
Many people with Chronic Illness require full time Carers. Often that role is filled by loved ones. Our husbands, wives, life partners, siblings, parents, children, even grandparents.Watching a loved one suffer is just so confronting. No one wants to see someone writhing in pain, or watch the person they're caring for lose their ability to … Continue reading Caring For The Carer
It’ll do”“It’s good enough”“You’re doing so well”” Good job”“Time to rest”“Not going to happen today”“Maybe tomorrow”In my previous life, by which I mean life before chronic illness, I always had a whole range of “self talk” language helping me achieve my goals.They were all positive, affirmative statements like;“you can do it, you’ve got this, keep … Continue reading Self Talk….”It’ll Do” And Other Chronic Illness Chat Lines
There is always a lot I can write about in regards to my health but today I want to say “Happy Easter”.This is such a wonderful time of the year, full of the hope of new life, as we remember what Jesus did for us on the cross, dying so we might be saved and … Continue reading A Sweet Happy Easter!
You know the feeling of completing a jigsaw puzzle only to find a piece is missing?It’s a devastating moment. Your stomach turns just a little. So much work, so much effort. So much anticipation of revealing a beautiful picture and this awaiting reward has been snatched away from you!Chronic and complex illness is so often … Continue reading Looking For The Missing Piece Of The Puzzle
Chronic Illness takes many things from us. Some aspects of our diseases we can’t control but there are some we need to find a way to overcome. Over the past 6 months I have felt like my disease has been winning. I’ve felt like a prisoner in a body determined to suffocate me. I’ve even … Continue reading I Can’t Give Up…..Please, Let Me Try!
Sometimes, all I need is a teaspoon of strength in the form of little miracles.Living with a chronic disease reminds me of some of my previous plane trips. I’d start off full of nervous anticipation with a little fear of what lay ahead once on board. There were some smooth passages and then all of … Continue reading Teaspoons and Mini Miracles
My Medical Musings 