“Grief is the price we pay for love.” Queen Elizabeth II

I awoke to the sound of rain pouring down, and the sky was as black as the ace of spades. My body, as is normal, was screaming at me, as lying in bed for 6 hours causes every joint to seize, and my broken bones burn. I slowly twisted my legs off the bed and … Continue reading “Grief is the price we pay for love.” Queen Elizabeth II

There is Something Good in Every Day…Even With Chronic Disease

There is something good in every day. Is there? Is that even a possible concept for those of us who have chronic diseases? The initial response from the chronic illness community is likely to be a resounding "No". Pain, procedures, lack of sleep, lack of understanding, countless medical appointments and tests, chronic fatigue, lack of … Continue reading There is Something Good in Every Day…Even With Chronic Disease

My Chronic Illness Clown For The Day!

"I'm going to be your clown for the day" These are the words my husband greeted me with, as I munched on my cornflakes. I knew instantly why, but I imagine his statement will require some explaining. I had a crazy idea I could take on a bigger workload. As my regular readers will know, … Continue reading My Chronic Illness Clown For The Day!

Live Your Best Life….And What Did Sam Do Next?

(This is an excerpt from Chapter Two of my book, My Medical Musings, A Story of Love, Laughter, Faith and Hope, available as an e-book or paperback through Amazon or ImagineWe Publishers. It also provides an update, as promised, to an earlier blog, "What Sam Did Next") How do you continue to live life to … Continue reading Live Your Best Life….And What Did Sam Do Next?

Can You Have A Chronic Illness And A “To Do List”?

How many times have you written a "To Do List" this week?How many times have you looked at the list and felt like it's an impossible dream?How many times have you felt useless because you've only ticked off a few items?How many times have you looked at the list and felt like it's been taunting … Continue reading Can You Have A Chronic Illness And A “To Do List”?

What Sam Did Next…

Growing up I loved the Susan Coolidge novels, "What Katy Did" , "What Katy Did At School" and What Katy Did Next". Katy had way too many good ideas, which generally got her into trouble, but things always worked out well in the end. There was definitely always a morale to the story. I think … Continue reading What Sam Did Next…

Seize The Day

This week I celebrated my 57th birthday! I wasn't going to reveal my age but then I thought, "wow I'm 57....I made it to 57". So with that thought I realised I should shout it from the mountain top. My health has not been kind for the past 15 years and on a few occasions … Continue reading Seize The Day

It’s Never As Easy As…

How many times have you said, “No worries, that’s as easy as…….”I know I’ve said it countless times during my life. In fact its how I used to live my life. Everything was seemingly easy and if it wasn’t, I could quickly convince myself it was.I had a positive can do, absolutely, yes to everything, … Continue reading It’s Never As Easy As…

Snap, Crackle, Pop…Caring Love Never Stops!

Snap, crackle and pop…and just like that I can't move my back. I've been doing reasonably well so it's disappointing when my broken body decides to break a little more, but this is life with a crazy bone disease. I can't thank my beautiful husband enough for his love and support. When you can't do … Continue reading Snap, Crackle, Pop…Caring Love Never Stops!

Carparks, A Recliner And A Telephone

You may read this blog post title with a sense of bewilderment. You may be wondering where on earth am I going with this and what on earth has any of it got to do with chronic disease and disability! Well, in my world these three things, Carparks, a Recliner and a Telephone, have all … Continue reading Carparks, A Recliner And A Telephone