My Spinal Specialist appointment went well. I think that's the best description under the circumstances. I managed to walk to his office using my walker and I thought I was doing well. As I entered his room I smiled as brightly as possible. However the pain in my eyes and my inability to move faster … Continue reading Surgery Can’t Come Soon Enough!
Sometimes the chronic illness road has twists and turns. Sometimes it has major cracks and potholes. My latest bone disease adventure has created a new chronic illness road cliché. I've found myself in the midst of what I'm calling, a "cracking chronic fault line" Think earthquake and you'll get the idea. I recently wrote about … Continue reading From A Spine Tingling Saga To A Cracking Crisis
Saga by definition means, a long story of heroic achievement or, a long story full of incidents. This story is definitely the latter, no heroics to be found I assure you. Rewind three weeks ago and I woke up to find I couldn't turnover in bed. I had pain in my right lower back that … Continue reading A Spine Tingling Saga
"Trigeminal Neuralgia.....what on earth is that?" That was my reaction when I was hospitalised in May 2014 with the most severe right-sided face pain that I had ever experienced in my life. I had been trying to cope with it for 3 weeks with strong pain killers. I was thinking it was just another idiosyncrasy special … Continue reading Taking A “One Day At A Time” Philosophy With Chronic Illness
I recently saw one of my favourite Specialists. I always look forward to seeing this particular Specialist. We have become good friends and enjoy chatting about all things French. She is mad about France as am I. With me being born on Bastille Day and also loving French decor, the food and the language, well … Continue reading Apparently Life Won’t Stand Still, Even If My Legs Won’t Work!
A friend recently posted a question in a Facebook Group, about ways to gain freedom in life, so you can choose how you want to live it. "What has most helped you to gain freedom in your life to choose exactly how you want to live it?" Jayne Bailey My response was one word. Acceptance. … Continue reading Is Acceptance Just Resignation?
I was sitting at our local cafe this week, which is situated on a Point overlooking the Bay and beautiful Islands beyond. It really couldn't be more idyllic and I am blessed to live so close to such a gorgeous place on Australia's east coast. As my husband and I were sipping our cool drinks … Continue reading The Tides of Chronic Illness
I really wasn't sure if I wanted to reflect on 2017. Was it worth reflecting on my life with chronic disease? Did I achieve anything? Did I want to relive what at times felt like days and months of overwhelming pain? One of my coping mechanisms, that helps me live well with my rare disease, … Continue reading Reflect and Restart
How often do you find yourself reaching for the phone, to send a text or email the moment something happens in your life? How often do you stop and pray first, asking God for strength and wisdom or thanking Him for the blessing? Does a Facebook post often take precedence over spending time reflecting in … Continue reading Meditate on These Things
The term "Rare Disease" suggests unknown territory, complications and no easy answers. That terminology definitely describes my rare bone disease. My Orthopaedic Specialist appointment today didn't fully deliver on my great expectations but on some levels it did. It certainly delivered a sense of direction and further understanding of what it means to live with … Continue reading Accepting Reality
My Medical Musings 