“Would You Like A Second Opinion?”… Surreal And Scary!

When you've lived with Chronic Illness for a number of years, at some point, you adjust to a new way of living. You eventually find a new norm. While you might expect a few highs, lows and some disease flares along the way, generally life evolves into a settled and comfortable pattern. Until it suddenly, … Continue reading “Would You Like A Second Opinion?”… Surreal And Scary!

Bigger Isn’t Always Better In Life

Bigger isn't always better in life. I'm not talking about weight size or the size of your bank balance or home, I'm talking about bigger bones. If you research bone disease on "Dr Google" you'll find copious amounts of information about Osteoporosis, low bone density and the importance of having good healthy bones. Try researching high … Continue reading Bigger Isn’t Always Better In Life

From A Spine Tingling Saga To A Cracking Crisis

Sometimes the chronic illness road has twists and turns. Sometimes it has major cracks and potholes. My latest bone disease adventure has created a new chronic illness road cliché. I've found myself in the midst of what I'm calling,  a "cracking chronic fault line" Think earthquake and you'll get the idea. I recently wrote about … Continue reading From A Spine Tingling Saga To A Cracking Crisis

Accepting Reality

The term "Rare Disease" suggests unknown territory, complications and no easy answers. That terminology definitely describes my rare bone disease. My Orthopaedic Specialist appointment today didn't fully deliver on my great expectations but on some levels it did. It certainly delivered a sense of direction and further understanding of what it means to live with … Continue reading Accepting Reality