When you've lived with Chronic Illness for a number of years, at some point, you adjust to a new way of living. You eventually find a new norm. While you might expect a few highs, lows and some disease flares along the way, generally life evolves into a settled and comfortable pattern. Until it suddenly, … Continue reading “Would You Like A Second Opinion?”… Surreal And Scary!
Bigger isn't always better in life. I'm not talking about weight size or the size of your bank balance or home, I'm talking about bigger bones. If you research bone disease on "Dr Google" you'll find copious amounts of information about Osteoporosis, low bone density and the importance of having good healthy bones. Try researching high … Continue reading Bigger Isn’t Always Better In Life
Sometimes the chronic illness road has twists and turns. Sometimes it has major cracks and potholes. My latest bone disease adventure has created a new chronic illness road cliché. I've found myself in the midst of what I'm calling, a "cracking chronic fault line" Think earthquake and you'll get the idea. I recently wrote about … Continue reading From A Spine Tingling Saga To A Cracking Crisis
Saga by definition means, a long story of heroic achievement or, a long story full of incidents. This story is definitely the latter, no heroics to be found I assure you. Rewind three weeks ago and I woke up to find I couldn't turnover in bed. I had pain in my right lower back that … Continue reading A Spine Tingling Saga
The term "Rare Disease" suggests unknown territory, complications and no easy answers. That terminology definitely describes my rare bone disease. My Orthopaedic Specialist appointment today didn't fully deliver on my great expectations but on some levels it did. It certainly delivered a sense of direction and further understanding of what it means to live with … Continue reading Accepting Reality
I've had a week of surprises. I should be used to the unexpected by now and generally I am. I take the shocks and twists and turns my body throws at me in my stride most days, most weeks. This week felt different though. Two weeks ago I felt a snap in my left foot. … Continue reading From Chaos to Calm
This past week has been one of my most difficult. I have been gradually, over the past 4 weeks, feeling more pain in my broken leg. I thought that perhaps the screw that was inserted above my knee in August, to try and encourage healing, was in fact causing the bone to compress as it … Continue reading It’s just complicated!