Everything I've experienced now makes so much sense. I now know why, and for some reason, that knowledge removes its power over me. It's part of me rather than being something attacking me from nowhere.
I need time to have fun again, to block out all the "have too's" and spend blocks of time feeling free to focus on unimportant things, trivial things, moments of not worrying about commitments, life stresses etc.
I never thought I would need a Go Fund me account but I realise there are times in our lives when we simply need to ask for help from a "village" of people, who are each able to assist just a little, so we can raise just enough.
“Why me” can become “why not me”. Sickness is a part of life. Accepting it as your new reality, can help change your disabled world into an abled world.
47% of Australians live with a chronic disease, and Samantha Moss is one of them. We talk to her about how she manages her wounds, how she stays positive, and how health professionals can better care for people with long-term conditions
(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading My Chronic Illness Rule Book ….(My Four Day Rule)
There is something good in every day. Is there? Is that even a possible concept for those of us who have chronic diseases? The initial response from the chronic illness community is likely to be a resounding "No". Pain, procedures, lack of sleep, lack of understanding, countless medical appointments and tests, chronic fatigue, lack of … Continue reading There is Something Good in Every Day…Even With Chronic Disease
How many times have you said, “No worries, that’s as easy as…….”I know I’ve said it countless times during my life. In fact its how I used to live my life. Everything was seemingly easy and if it wasn’t, I could quickly convince myself it was.I had a positive can do, absolutely, yes to everything, … Continue reading It’s Never As Easy As…
Many people with Chronic Illness require full time Carers. Often that role is filled by loved ones. Our husbands, wives, life partners, siblings, parents, children, even grandparents.Watching a loved one suffer is just so confronting. No one wants to see someone writhing in pain, or watch the person they're caring for lose their ability to … Continue reading Caring For The Carer
It’ll do”“It’s good enough”“You’re doing so well”” Good job”“Time to rest”“Not going to happen today”“Maybe tomorrow”In my previous life, by which I mean life before chronic illness, I always had a whole range of “self talk” language helping me achieve my goals.They were all positive, affirmative statements like;“you can do it, you’ve got this, keep … Continue reading Self Talk….”It’ll Do” And Other Chronic Illness Chat Lines
My Medical Musings 