For two years, before medically retiring, I was still holding out hope of being able to return to work eventually, despite being on Income Protection and battling one health hurdle after the other. The realist in me knew I was facing a very different life, as I began to lose my ability to walk any … Continue reading The Best Disability Advice I Ever Received Was Not What I Expected!
Category: Chronic Disease
Is It Sunday, Monday, or Tuesday….And Does It Really Matter What Day It Is?
Ultimately, it doesn’t matter what day it is.It matters that I make the most of every single day and make the moments within the day count. It matters that I don’t waste time being discontent about my circumstances.
Cancel The Day, Cancel a Few Days….Just Remember It’s Important To Take Time To Look After Yourself.
There is always the temptation, when appointments or commitments are cancelled, to fill the time with other things. I know I can't, even though my head is always full of great ideas. My body is screaming at me. I have to listen to it.
“Long Live The King”….A Coronation Celebration Chronic Illness Style
Love the Royal family or not, if you live in the UK or a Commonwealth country like Australia, Saturday May 6th is the Coronation of our new King Charles III. I can't think of a better way to mark this historic event than enjoying a high tea with my husband watching the pomp and ceremony chronic illness style.…. cucumber sandwiches, ham sandwiches, Devonshire scones etc and of course all on my best china!
Reflecting on Resilience, Courage, and My Chronic Illness Journey.
What I didn’t realise was how much resilience and courage I would need to publish my memoirs and even just to blog about my chronic illness journey. I knew I wanted to share my story to help others, but to do so really does make you vulnerable.
Celebrating Good News, Feeling Sad, Facing Change? There’s Only One Solution… A Cup of Tea!
There is something strangely calming about putting on the kettle, taking out a pretty china cup or mug, anticipating sitting in a comfy chair, and slowly sipping this hot delight.
My Latest Podcast Episode…My Hospital “Oops” Events and Other Anecdotal Incidents!
If you feel like listening to my "Musings " rather than reading them, here's the link to my latest podcast on Medical Musings With Sam. Just be warned, I think this latest episode may be more like ramblings than musings, or perhaps a bit of both. Either way, I'm sharing my latest surgical journey and … Continue reading My Latest Podcast Episode…My Hospital “Oops” Events and Other Anecdotal Incidents!
You Have a Chronic Illness, but It’s Ok to Look and Sound Good When You Can. It’s Ok to Still be You!
I don’t want to be a prisoner to my disease. I want to scale whatever heights I can safely push, and ultimately I’m the only one who can decide my limits.
A Messy Easter
For someone with a body failing at every opportunity, the joy and hope Easter offers is one day I will have a new life in heaven and a new body. Imagine no more sorrow or pain. How beautiful and what amazing grace to receive such a gift. At Christmas, we so easily celebrate the birth … Continue reading A Messy Easter
Honey, I’m Home! (Escaping Hospital Hazards and Embracing Home Harmonies)
Life is short. It's precious, and it's fragile while being incredibly resilient and strong. My home is my safe place, and I'm convinced because I love it, and I love my husband, it's the place that helps me heal in a way I never do in hospital.