March 8th is International Women's Day "Imagine a gender equal world. A world free of bias, stereotypes and discrimination. A world that's diverse, equitable, and inclusive. A world where difference is valued and celebrated. Together we can forge women's equality. Collectively we can all #BreakTheBias.Celebrate women's achievement. Raise awareness against bias. Take action for equality"International … Continue reading #Break The Bias
What a week! Parts of Australia, in South East Queensland and New South Wales, are experiencing catastrophic flooding. It's due to an extreme, unpredictable weather system we are calling a "rain bomb". One reporter said the rain was of "biblical" proportion and I have to agree. I was lying in bed listening to it's intensity … Continue reading Just Because It’s Over, Doesn’t Mean It’s Over
We all know how important it is to be validated. For those of us with rare diseases, or any undiagnosed chronic illness, being validated often means having a specific name for our diseases. Sometimes though there are diseases, recognised by the medical profession, that simply don't have names. They are often called "idiopathic" as they … Continue reading Why Is It Important Your Rare Disease Has A Name? ….It Gives You Validation!
February 28th is an incredibly important day, especially for those of us working hard to raise awareness about rare diseases. February 28th is the global Rare Disease Day. On my support forum, Medical Musings with Friends, I have many members with rare diseases. Some of these diseases have names, some are so rare they are … Continue reading World Rare Disease Day – February 28th (A Guest Post By Gina Baker)
Ok, the title of this blog post is probably more confusing than it is enlightening. Let's go for "intriguing" and hopefully together we will unpack it's hidden treasures. I was listening to a sermon on Sunday morning and the preacher made an interesting comment, causing me to listen a little more intently than I had … Continue reading Stones or Balloons?
We all make decisions every day. Big decisions, small decisions. Some we are aware of and some are just automatic. When I had reasonable health, I would spend my days making business and personal decisions without much effort. Some might have kept me awake at night but not many. I never had to think about … Continue reading The Most Important Decision When Living With Chronic Illness
We all know the saying; "When life gives you lemons, use them to make lemonade" It conjures up the notion of strength, determination, optimism, resourcefulness, resilience. All characteristics I've drawn on to deal with the "chronic illness lemons" continuously thrown at me. My lemons often feel like tennis balls in one of those practice machines. … Continue reading Let’s Make Some Lemonade!
Sometimes laughter is the best medicine, especially when chronic illness turns the simple act of going to bed, into a circus act.I’m no poet, but as my husband and I recovered from last night’s antics over our morning coffee, our conversation ignited a tiny bit of poetic creativity:As I lay me down to sleepMy naughty … Continue reading As I Lay Me Down To Sleep…. Who Am I Kidding!
If you love the original Mary Poppins movie, you will be very familiar with one of the songs sung by Dick Van Dyke, “Let’s Go Fly A Kite” I love the lyrics and melody. It conjures up happy childhood memories. I had the Mary Poppins album and would play it in my bedroom, on my … Continue reading A New Year….A Blank Canvas
Love is a beautiful thing and never more so when it has ripened and flourished. On the 15th December, my husband and I will have been married 26 years, and on Christmas Day it's 27 years since our engagement. The Facebook post below sums up my love for Peter. Like all couples we have our, … Continue reading Our 26th Wedding Anniversary
My Medical Musings 