Only 3 months ago I was writing about how "surgery can't come soon enough" We knew even then there was a risk of surgery failing. We knew my bone disease was behaving erratically and had a mind of its own. Despite the risks of surgery failure we just didn't have a choice. We had to … Continue reading Here We Go Again…..Spinal Surgery Take Two!
I'm a huge fan of pacing. It's number one on my list of key chronic illness/ pain management strategies. Pacing doesn't remove symptoms or take all my pain away. It does help to reduce some discomfort and reduces the risk of me causing an escalation of more crippling issues. Well, usually it does that!! My … Continue reading Sometimes A “Sick Day” Is Necessary, Even If You Are Already Chronically Ill
I have had my nose buried in my phone for the past three months. Well ok, it's always buried in it, but this has been excessive and it's all because I've been on a mission. Mission Impossible My mission has been to find a way to sell our home, pay off our mortgage and find … Continue reading Accepting A New Adventure…Chronic Illness Style
I have a "Now or Never" philopsophy to life that sometimes gets me into trouble. Well, let's face it....always gets me into trouble! Living with a physical progressive disability involves a lot of pain, lack of mobility and extreme fatigue every day. This kind of disease is constant. It doesn't ebb and flow with flares. … Continue reading Pushing And Pacing With A Progressive Chronic Disease….Courageous Or Stupid?
We often think of God’s plans for our life in terms of grandiose ideas. We may think the little things in our life are just not as important as the big-ticket items. In my experience, little things do matter in the big scheme of things. When I medically retired 4 years ago, despite being disabled, there … Continue reading Little Things Do Matter….Especially When Living With Chronic Illness
If you love the original Mary Poppins movie, you will be very familiar with one of the songs sung by Dick Van Dyke, "Let's Go Fly A Kite" I've been singing it over the past few days as the lyrics and melody are so uplifting: With tuppence for paper and strings, You can have your … Continue reading “Let’s Go Fly A Kite”….Dreaming Dreams Despite Disability
As Christmas and year end comes around, I’m in a reflective mood. It’s been a great year for me from a writing perspective. I've enjoyed networking with other bloggers within the chronic illness blogging community. I've also connected this year outside of the chronic illness world, with lovely Christian women through Grace Girls and the … Continue reading My Writing Year In Review
I'm a week post L4/L5 laminectomy and decompression surgery. I've been home from hospital for 5 days and the road to recovery has begun. Well sort of. I really feel like I'm still in survival mode. My Surgeon tells me we did the right thing proceeding with this surgery. My spinal cord was severely compressed … Continue reading The Spinal Surgery Recovery Road
My Spinal Specialist appointment went well. I think that's the best description under the circumstances. I managed to walk to his office using my walker and I thought I was doing well. As I entered his room I smiled as brightly as possible. However the pain in my eyes and my inability to move faster … Continue reading Surgery Can’t Come Soon Enough!
Sometimes the chronic illness road has twists and turns. Sometimes it has major cracks and potholes. My latest bone disease adventure has created a new chronic illness road cliché. I've found myself in the midst of what I'm calling, a "cracking chronic fault line" Think earthquake and you'll get the idea. I recently wrote about … Continue reading From A Spine Tingling Saga To A Cracking Crisis
My Medical Musings 