Here We Go Again…..Spinal Surgery Take Two!

Only 3 months ago I was writing about how “surgery can’t come soon enough”

We knew even then there was a risk of surgery failing. We knew my bone disease was behaving erratically and had a mind of its own.

Despite the risks of surgery failure we just didn’t have a choice. We had to try to relieve the intensity of pain I was experiencing. We had to give me the chance to stand for longer than 5 minutes. I was losing my ability to walk at all, even with aides, and my bowel and bladder were being impacted.

We Didn’t Expect This So Quickly

When we thought about surgery failure, we thought in terms of a year, maybe two.

What we didn’t expect was my MRI, from a week ago, would show more severe spinal stenosis and spinal cord compression than before my surgery!

I knew my pain was escalating. I knew something wasn’t right but I wasnt expecting the results the MRI presented us with.

It was/is a little mind-blowing!

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My Ligamentum Flavum is Doing What?

So, apparently my ligamentum flavum has thickened within 3 months and is buckling into my spinal cord recess, causing severe spinal stenosis.

Now I have to admit, I had no idea what a ligamentum flavum was. I’m now an expert…sort of!!

So let’s keep this all simple. The spinal ligamentum flavum is one of the tough bands of tissue that connects the vertebrae and provides stability for proper posture and back movement.

When it buckles it causes symptoms when the spine is straight, making standing, walking or lying down incredibly painful.

When the back is bent, the buckled ligament stretches and pressure is removed from the spinal cord or adjacent nerve roots. So sitting is a better position.

In my case the buckling ligament is causing severe spinal stenosis but so is my L4 facet joint.

I’m being attacked from both sides. So, I have issues sitting as well as standing/lying. I basically can’t do anything without severe pain in my lower back and legs.

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The Green arrows point to the Ligamentum Flavum Buckling at L4

The Verdict

Today was the day to face my Surgeon. He is such a lovely guy and he was not wanting this outcome any more than I was.

The appointment was brief. It was all pretty straight forward really. I had two options.

  1. Live with excruciating pain and worsening disability;
  2. Try and relieve said pain with more surgery.

His strong recommendation was surgery. My choice was surgery with one proviso.

I asked if he would also do a biopsy on my spine/ligament, during the surgery, to see what it might reveal in terms of my bone disease.

His immediate response was, yes it’s a great idea. I was so relieved. There is something very aggressive happening in my spine so it’s possible it may hold some further insight into my rare bone disease. Here’s hoping!!

The Date Is Set

1st of March has been set as the surgery date. Less than 2 weeks away which is a good thing.

I’m back to thinking “Surgery can’t come soon enough”

Here we go again!

Sam xx

When I am afraid, I put my trust in you.
In God, whose word I praise—
in God I trust and am not afraid.

Psalm 56 v 3-4

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16 thoughts on “Here We Go Again…..Spinal Surgery Take Two!

  1. Sam, I’m sorry to hear this 😔! The biopsy will be interesting for sure. I pray for a better outcome. I’m keeping you in my thoughts and prayers! 🙏🏻 Gentle hugs, Marla

    Liked by 1 person

  2. Oh Sam – I am so sorry to hear this news. On the positive side – it sounds like you have a terrific surgeon. Please know you, your family, and your surgeon/staff will be in my prayers. I am praying this surgery will be a huge success and life will become easier for you. I haven’t known you very long, but I have grown to care about you. My husband and I will be asking the Lord for His grace and healing comfort. Blessings to you, my new friend!

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  3. Sam, I can relate to the excruciating pain but mine has been a constant for almost 30 years. I know your pain escalates and for that, I am so sorry. I am praying for you and your family, the doctors & nurses and the surgery itself – that the Great Surgeon will be there overseeing it all. Love and cyber hugs to you. I pray that you get the relief and answers you want/need from this.
    Lydia!

    Liked by 1 person

  4. Will also be praying for you that this surgery corrects the spinal compression. I hope this doesn’t increase the stress of trying to find a house, but it probably does. Sending gentle hugs and love your way.

    Liked by 1 person

    1. Thanks so much Kathy. Thankfully we have found a house but need ours to sell first. The market is slow so who knows what will happen at the end of the day. We are literally taking everything one step at a time and leaving the outcome in God’s hands. His timing will be perfect xx 💜

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