When you've lived with Chronic Illness for a number of years, at some point, you adjust to a new way of living. You eventually find a new norm. While you might expect a few highs, lows and some disease flares along the way, generally life evolves into a settled and comfortable pattern. Until it suddenly, … Continue reading “Would You Like A Second Opinion?”… Surreal And Scary!
You know that feeling when you are completing a jigsaw puzzle only to find that a piece is missing? It’s a devastating moment. Your stomach turns just a little. All that work, all that effort, all that anticipation of a final outcome. A completed picture was the awaiting reward but it’s been snatched away from … Continue reading Finding Your Way Through A Chronic Illness Conundrum
I thought my body couldn't possibly surprise me anymore. I thought I had a good handle on the reality of my diseases and on so many levels I do! I wrote a blog post last year, called "Sending The 'What If's' of Life Packing" It's all about focusing on "What Is" rather than "What If". So … Continue reading “Do I Get Fries With That?” Dealing With Chronic Illness Side Dishes!
Only 3 months ago I was writing about how "surgery can't come soon enough" We knew even then there was a risk of surgery failing. We knew my bone disease was behaving erratically and had a mind of its own. Despite the risks of surgery failure we just didn't have a choice. We had to … Continue reading Here We Go Again…..Spinal Surgery Take Two!
I'm a week post L4/L5 laminectomy and decompression surgery. I've been home from hospital for 5 days and the road to recovery has begun. Well sort of. I really feel like I'm still in survival mode. My Surgeon tells me we did the right thing proceeding with this surgery. My spinal cord was severely compressed … Continue reading The Spinal Surgery Recovery Road
My Spinal Specialist appointment went well. I think that's the best description under the circumstances. I managed to walk to his office using my walker and I thought I was doing well. As I entered his room I smiled as brightly as possible. However the pain in my eyes and my inability to move faster … Continue reading Surgery Can’t Come Soon Enough!
Sometimes the chronic illness road has twists and turns. Sometimes it has major cracks and potholes. My latest bone disease adventure has created a new chronic illness road cliché. I've found myself in the midst of what I'm calling, a "cracking chronic fault line" Think earthquake and you'll get the idea. I recently wrote about … Continue reading From A Spine Tingling Saga To A Cracking Crisis