A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
I’m not afraid of storms, for I’m learning how to sail my ship.Louisa May Alcott (Author of “Little Women”) I always think we have a choice when faced with “storms of life”.We can bunker down and wait for the storm to pass, or we can continue to live, albeit with impediments, and find a way … Continue reading Sailing Through Storms
Sometimes, all I need is a teaspoon of strength in the form of little miracles.Living with a chronic disease reminds me of some of my previous plane trips. I’d start off full of nervous anticipation with a little fear of what lay ahead once on board. There were some smooth passages and then all of … Continue reading Teaspoons and Mini Miracles
Happiness is letting go of what you think your life is supposed to look like, and celebrating it for everything that it is” – Mandy Hale What an insightful quote! There is so much simplicity to it, yet it is full of depth and wisdom.When we live with Chronic Illness, it’s very easy to fall … Continue reading Your Ticket To A New Life…..(Let Go Of What You Think Life “Should” Look Like)
I have neglected my Podcast since June last year for various reasons. I'm so happy to be back with my first episode for 2022. One of my goals ticked already! I hope you find it helpful as you start your own journey into 2022. Lots of love, Sam xx (My Podcast can be streamed on … Continue reading My First Podcast for 2022….I’m Back!
I was once called "Stoic" when I was working, because of the way I got on with my chronic health issues without fuss. I was always cheerful, smiling and putting others first. I kept working full time with this stoic attitude and nature, until my body physically would no longer let me. Even with a … Continue reading Stoic or Stupid?
Some dates are forever etched in our memories. I have a few but one is a day I will never forget October 6th 2014. It was the day my femur broke. It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that even Specialists … Continue reading One Step, Two Steps…..Will There Be A Third?
On the 14th October 2021, after 5 weeks bed bound in hospital, due to my “acute” spinal collapse and bone disease progression, I was finally allowed home. I was sent home via ambulance as my condition hadn't improved. I still couldn't sit or stand for more than 2 minutes at a time. Walking with a … Continue reading Overwhelmed and Under Prepared
Some challenges in life hit us so hard, as we never saw them coming. Such challenges don't allow us the luxury of preparing ahead of time. They give no warning. They simply arrive! My "acute" spinal collapse , would prove to be one of the hardest challenges I have ever faced, and I've documented a … Continue reading Hard Work In Hospital
It was 3am Tuesday morning, 7th September, 2021. I desperately needed to go to the bathroom, so I rolled out of bed, the way physiotherapists had always shown me to do. I reached for my awaiting crutch and made it to the ensuite, not without pain, with my usual pain. I got back into bed … Continue reading An Acute Life Changing Chapter
A week ago I had yet another spinal MRI, my second in three months. Something new happened on the left side of my lumbar spine a few weeks ago, which caused a massive increase in my disability. I can no longer stand for more than 5 or 10 mins at a time, even using aides, … Continue reading An Honest Chat With My Specialist….It Just Can’t Be Fixed!
My Medical Musings 