A Year Later…One Step, Two Steps…Will There Be A Third?

Some dates are forever etched in our memories. I have a few but there are two I will never forget. October 6th 2014 is the first. It was the day my femur broke.   It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that … Continue reading A Year Later…One Step, Two Steps…Will There Be A Third?

An Honest Chat With My Specialist….It Just Can’t Be Fixed!

A week ago I had yet another spinal MRI, my second in three months. Something new happened on the left side of my lumbar spine a few weeks ago, which caused a massive increase in my disability. I can no longer stand for more than 5 or 10 mins at a time, even using aides, … Continue reading An Honest Chat With My Specialist….It Just Can’t Be Fixed!

Happy 7th Birthday To My Stoma….Otherwise Known As Rudolph

I can’t believe the 11th November 2020, marks 7 years since my life changing colostomy surgery. My stoma, affectionately called Rudolph, is now 7 years old! For those of you without a stoma it may seem a strange thing to celebrate. While it was life changing, it was also life saving and I will be … Continue reading Happy 7th Birthday To My Stoma….Otherwise Known As Rudolph

Here We Go Again…..Spinal Surgery Take Two!

Only 3 months ago I was writing about how "surgery can't come soon enough" We knew even then there was a risk of surgery failing. We knew my bone disease was behaving erratically and had a mind of its own. Despite the risks of surgery failure we just didn't have a choice. We had to … Continue reading Here We Go Again…..Spinal Surgery Take Two!