I am really excited to introduce you all to my Guest Blogger, Rachel Fearnley. While Rachel doesn't live with a chronic illness herself, she is passionate about raising awareness of what it's like for families who live daily with someone who has a life limiting illness. Rachel is a social worker who has worked with children … Continue reading Guest Blogger, Rachel Fearnley – Ponderings of a Passionate Maverick
Thank you so much to Tasha at Pain Warrior Code, for nominating me for A Mystery Bloggers Award. I'm a bit under the weather at the moment but I don't want to not acknowledge this lovely nomination. So rather than boring you all with more of my story, I wanted to share Tasha's responses to … Continue reading The Mystery Blogger Award
A forum member on my FB group, Medical Musings with Friends, posted an "open letter" that her husband recently wrote. It is so moving for anyone who is the primary caregiver for their loved one. I thank Him for giving me permission to publish it. To Whom It May Concern My wife was recently placed on … Continue reading An Open Letter from a Husband Concerning His Chronically Ill Wife
Those of us living with chronic illness will know only too well how our bodies rebel against us with little warning. Every morning I tentatively wake up, opening one eye at a time very slowly, scared to move. Will my body behave a little today? Will the slightest movement cause searing pain? Usually it's the … Continue reading Body Behaving Badly
At the start of a new week or month, I have a, "what's on your calendar?" segment on my Facebook Forum, Medical Musings with Friends. The idea is to take a quiet moment, to think about what lies ahead. We muse about how we are feeling, what we are concerned about, what we are excited about. … Continue reading A Chronic Disease Management Plan – Do You Have One?
A friend recently posted a question in a Facebook Group, about ways to gain freedom in life, so you can choose how you want to live it. "What has most helped you to gain freedom in your life to choose exactly how you want to live it?" Jayne Bailey My response was one word. Acceptance. … Continue reading Is Acceptance Just Resignation?
This week I've had the pleasure of participating in the Annual RA Blog Week. It's a wonderful event for bloggers from around the world to share their insights on what it's like living with Rheumatoid Arthritis & often other associated autoimmune diseases. Each day of the week a topic is chosen for bloggers to write … Continue reading RA Blog Week 2017 – A Feast of Great Blogs
Years ago, when I was much younger, 22 to be precise, I was involved in the restoration of a historic church building. It had been left derelict for years. To see it returned to its original glory as a place of worship was amazing. After the restoration was completed, I would visit the church on … Continue reading How Sweet it is to Trust in Jesus
Behind every great man is a great woman, or so the saying goes. Let's flip that on it's head a little. Behind this chronically ill wife is an amazing husband. A husband who has become a full-time carer. A husband who has gone beyond the call of duty. A husband who has become my legs, … Continue reading Thank you Sweetheart
I have just had the night from hell. Pain has soared through every bone, muscle and joint in my body as my bone disease attacks from every angle. I woke from a deep sleep screaming at 2am, causing my husband to jolt upright and run to my side. I couldn't move any limb. I was … Continue reading Joy in the Morning
My Medical Musings 