Behind every great man is a great woman, or so the saying goes.
Let’s flip that on it’s head a little. Behind this chronically ill wife is an amazing husband. A husband who has become a full-time carer. A husband who has gone beyond the call of duty. A husband who has become my legs, my cleaner, my cook, my shopper, my gardener, my driver, my nurse.
A husband who holds my hand when I’m writhing in pain. A husband who heats wheat packs in the middle of the night or makes me a cup of tea in the early hours of the morning, when sleep is completely disturbed by pain.
My husband is nothing short of amazing and I don’t know how, I don’t even want to think about how, my life would be without him by my side.
We share this chronic illness journey, warts and all. He knows me better than anyone else. He can tell when I’m exhausted even before I can. He never complains at this life that has been landed in his lap.
He never gets annoyed at me for my limitations. If anything he gets annoyed at me when I try to do things beyond my limitations. That’s when I frustrate him.
It’s a frustration born out of love though. It’s because he knows how much pain I will endure for stretching my limits. He speaks to me of hating what my body is doing to me and how he feels so helpless. That breaks my heart to hear him say that😢
A World Of Our Own
Somehow we have managed to create a world of our own that works for us. While it is an extremely limited life, it is also a full and an ever expanding life. Most of it is spent in the four walls of our home but we are together and we create our own adventures on a daily basis.
We laugh and cry together, we read together, we pray together, we watch our favourite TV shows, we sit in our garden and chat as if on a beautiful date. We share the jobs around the house and keep our environment a place where we want to be.
We also have our alone time during the day. I have my online support forum and writing commitments and my husband always has a project on the go that he potters with in his “man cave”.
Although we usually only spend 2 or 3 hours apart each day that time is precious and important, particularly for a carer.
Where Would I Be Without Him?
I was recently asked to write on the topic of “Partners – Where would we be without our partners?”
I have a very simple answer to that question. Lost, lonely and in a permanent residential care facility.
Thank you Sweetheart, for all you do, your devotion, care, acceptance of our situation and your unfailing love.
Words really can’t express my love for you but I hope this blog post will always remind you that I think you are amazing and I love you so much💗💗
Thank you Sweetheart
Love is patient, love is kind. It does not envy, it does not boast, it is not proud. It does not dishonor others, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. Love does not delight in evil but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres.
1 Corinthians 13 v 4 – 7
Medical Musings with Friends
If you’re looking for genuine support, care, understanding and friendship, you are so welcome to join my closed Facebook support forum, Medical Musings with Friends . It’s a safe place to connect with others living with chronic and complex diseases, who truly understand the daily challenges. A warm welcome awaits.
My book “My Medical Musings”, is published by Imaginewe Publishers and available now to purchase as a paperback or e-book.
Here are the links to online retailers if you would like to purchase the book:
If you would like an audible version of my blog, please check out my Podcast, Medical Musings With Sam
I’m also a Contributor at “The Mighty”. You can check out my published articles at My Author Page