A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
On the 14th October 2021, after 5 weeks bed bound in hospital, due to my “acute” spinal collapse and bone disease progression, I was finally allowed home. I was sent home via ambulance as my condition hadn't improved. I still couldn't sit or stand for more than 2 minutes at a time. Walking with a … Continue reading Overwhelmed and Under Prepared
Snap, pop and crackle…and just like that I can't move my back. I've been doing reasonably well so it's disappointing when my broken body decides to break a little more, but this is life with a crazy bone disease. I can't thank my beautiful husband enough for his love and support. When you can't do … Continue reading Love Conquers All….Even Acute and Chronic Pain
This week on my forum Medical Musings with Friends , I posted a segment called "Any Questions?" I wanted to invite my forum members to ask me anything about my life, my disease, my writing etc. It was an open book kind of segment. The recurring question, or theme to the questions, was; "how do … Continue reading Any Questions?
Waiting isn’t easy, no matter what we are waiting for.2020 taught us this and 2021 has continued with the same waiting theme.As the world continues to grapple with a global health pandemic, we are all still waiting.Waiting for it to be over.Waiting for a vaccine against Coronavirus to become widely available and rolled out as … Continue reading Standing By You While You Wait
There are times I yearn to write but words fail me. Is it because I am overthinking? Is it because I'm too tired and in too much pain? Or is it because if I wrote what I needed to write, it may be too raw, too much for my readers and even too much for … Continue reading Straight From My Heart
After a week of appointments and feeling absolutely shattered, I looked at my calendar for the next day and it revealed a blank page. I breathed a huge sigh of relief. Most of my days are a blank page. This particular week had been an exception to the rule and I was suffering for it. … Continue reading Climbing Mountains With My Chronic Illness Friends
As I wake to a beautiful Christmas sunrise in Australia, I soak in the peace and quiet and reflect on how blessed I am to live in such a lovely country. While I'm used to a chronically ill isolated life, I'm so aware a COVID Christmas crisis is affecting so many lives globally and within … Continue reading Christmas COVID Crisis – Can Christmas Really Be Cancelled?
How many times have you jumped to a wrong conclusion about something? How many times have you inadvertently assessed a situation from the entirely wrong angle? How many times have you completely misjudged someone? Without even realising it, we all easily do this on a regular basis. Tiredness, busyness, listening to others views and opinions, … Continue reading We All Need To Be Understood…Everyone Has A Story
How do you continue to live life to the full when your health limits everything you do? How do you cope with waiting for a reprieve in symptoms when, the reality is, no reprieve is coming? I’m not going to say there are easy answers to these questions because there definitely are not. It’s hard. … Continue reading A Full And Fulfilled Chronic Illness Life
When I was working my husband always used to stir me about having my mobile phone strapped to my ear, or in my hand, almost 24/7. He wasn't exaggerating either! The other night while I was lying in bed frantically tapping away on my phone screen, I paused for a moment and looked up at … Continue reading I Love My Phone!! It’s A Chronic Illness Lifeline
