February 28th is an incredibly important day, especially for those of us working hard to raise awareness about rare diseases. February 28th is the global Rare Disease Day. On my support forum, Medical Musings with Friends, I have many members with rare diseases. Some of these diseases have names, some are so rare they are … Continue reading World Rare Disease Day – February 28th (A Guest Post By Gina Baker)
As 2021 is coming to a close, I like to take time to reflect on my writing year. I’ve so enjoyed blogging plus writing articles for The Mighty. I launched my Podcast in 2020, Medical Musings With Sam, which has proved to be a wonderful way to bring my blog posts to life. Thank You! So this … Continue reading Reviewing My Writing Year….Thank You For Reading, Sharing and Listening!
One of my Facebook Forum members, Gina Baker, shared her story recently of living with Mitochondrial Disease. I was so glad she did as I knew very little about it and having a rare disease of my own, I am very keen to raise awareness of other rare diseases. I asked Gina if she would … Continue reading Shining The Light On Mitochondrial Disease
Medical Musings with Friends started in January 2017. I was resting one afternoon in my bedroom, contemplating the new year ahead and wondering what possible purpose my life could hold, as my body kept spectacularly attacking me from every angle. I have a Rare Genetic Bone Disease with multiple bone breaks, ongoing surgeries, severe spinal … Continue reading Meet The Admin Team
I am really excited to introduce you all to my Guest Blogger, Rachel Fearnley. While Rachel doesn't live with a chronic illness herself, she is passionate about raising awareness of what it's like for families who live daily with someone who has a life limiting illness. Rachel is a social worker who has worked with children … Continue reading Guest Blogger, Rachel Fearnley – Ponderings of a Passionate Maverick
Behind every great man is a great woman, or so the saying goes. Let's flip that on it's head a little. Behind this chronically ill wife is an amazing husband. A husband who has become a full-time carer. A husband who has gone beyond the call of duty. A husband who has become my legs, … Continue reading Thank you Sweetheart
The lovely Mariah, Blogger at "From This Point Forward", has very kindly shared my story to her readers. Check it out, but more importantly please make sure you have a good look around Mariah's blog. It's a great one to follow 🙂 Sam xx http://www.fromthispointforward.com/2017/05/facing-forward-sam.html?m=1