I'm catching my breath with a cuppa to pause and ponder. So much has been going on in recent months. New diagnoses, flares of old diagnoses, my husband dealing with his own health battle, including a trip to ER and hospital admission, and the list goes on.
Stop everything. Do not pass any “Go” signs, or I will be going immediately to ER and paying $200 for the privilege!
As a patient advocate, I am often called, inspiring, motivating, and full of strength despite my adversities. The truth is, most days, I am just treading water.
A True Christmas Can Never Be Cancelled But It Can Be Different
(An Excerpt From Chapter Three of My Book, My Medical Musings, A Story of Love, Laughter, Faith and Hope: Living with a Rare Disease) Happiness is letting go of what you think your life is supposed to look like, and celebrating it for everything that it is” –Mandy Hale What an insightful quote! There is so … Continue reading Are You Living A Happy Life or A Life You Think You Should Be Living?
I need time to have fun again, to block out all the "have too's" and spend blocks of time feeling free to focus on unimportant things, trivial things, moments of not worrying about commitments, life stresses etc.
Every now and again, I wake up to a "Chronic Illness Catastrophe Day." These are days that happen to all of us with chronic illness, and I'm on a quest to work out how best to manage them once and for all!
“Why me” can become “why not me”. Sickness is a part of life. Accepting it as your new reality, can help change your disabled world into an abled world.
Sometimes life with chronic illness can be overwhelming. It's not always because of your disease either. It's often all the appointments, including doctors, allied health professionals, equipment trials, dealing with government departments, routine tests and procedures, etc. It can become a full-time job. Your body becomes your business, your place of work, and you can … Continue reading A Heartfelt Letter To Whom It May Concern … I Need To Get My Life Back!
Everyone wants to present the best version of themselves. We all have an image of how we’d like to look and often the image in our mind, falls short of the reality we see in the mirror.Of course some mirrors give a very distorted view. I have in my home what I call “naughty and … Continue reading Body Image….A Love Hate Relationship
My Medical Musings 