I'm tired.....so tired! I'm not depressed, I'm not sad, I'm just tired. My body is exhausted from fighting with itself daily. It can't even get a divorce from it's rare disease and walk away to a struggle free life. I'm just tired. Tired of medication. All the planning and administration, that goes into a meals … Continue reading It’s OK To Be Tired
How often do you tell yourself " I should be doing such and such" or " I'd better do this or that" ? We all do it. It's like we are programmed from birth to constantly have a catalogue of "should do, must do, better do", all filed in the front of our minds for … Continue reading “I Should, I Better, I Have To” …..No, You Really Don’t!!
"You better watch out You better not cry You better not pout I'm telling you why... Santa Claus is coming to Town!!" It's Christmas Eve!! I think it's always been my most favourite day of the Christmas period ever since I was a young girl. The excitement and anticipation of Christmas Day just around the … Continue reading It’s Christmas Eve……Chronic Illness Style
How many times have you written a "To Do List" this week? How many times have you looked at this list and felt like it's an impossible dream? How many times have you felt useless because you've only ticked off a few items? How many times have you looked at the list and felt like … Continue reading Can You Have A Chronic Illness And A “To Do” List?
Have you looked at your Calendar at the start of a month and thought to yourself, " What on earth was I thinking. I can't possibly do all that!" I'm sure I'm not alone in this exclamation. As I scrolled through my calendar on my phone for the month ahead, I felt physically sick. It … Continue reading Calendar Chaos
I love life's little challenges. I love problem solving and turning obstacles into opportunities. I love putting positive spins on what would otherwise be a very negative situation. I've done that all my life, both in my personal life and my working life. So, chronic disease really wasn't going to change that about me. It's … Continue reading When All Else Fails….Just Cancel The Day
We all have moments in life when we hit a brick wall physically and perhaps mentally. It happens to the healthy and chronically ill alike. I remember in my "healthier" life, I'd get to the end of my working week and I'd be exhausted. It was a normal exhaustion. The kind where you just needed … Continue reading Running on Empty – Do Not Pass “Go”
Sometimes, all I need is a spoonful of strength. Living with a chronic disease reminds me of some of my previous plane trips. I’d start off full of nervous anticipation with a little fear of what lay ahead once on board. There were some smooth passages and then all of a sudden we’d hit almighty … Continue reading Calming Chronic Illness Turbulence With A Spoonful of Strength
I'm not talking about the weather, it is the most glorious day outside as I blog inside, sitting in my favourite chair. I really should make the extra effort to get off my armchair, grab my crutches, grab my ipad, grab my coffee and go outside......hmmm, can't quite achieve that! Every morning I always have … Continue reading Musing while Waiting for the Morning Fog to lift!
One cup of tea & two cups of coffee & I am starting to feel a little more connected with the day.😊 My legs are having a "don't you dare try & walk on me" kind of day, so I have to pace my pacing if that makes sense. That has proven difficult today though!! … Continue reading Time & Lack of Motion