A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
On the 14th October 2021, after 5 weeks bed bound in hospital, due to my “acute” spinal collapse and bone disease progression, I was finally allowed home. I was sent home via ambulance as my condition hadn't improved. I still couldn't sit or stand for more than 2 minutes at a time. Walking with a … Continue reading Overwhelmed and Under Prepared
I can cope with most things about my disability. I'm not saying it's easy, it's far from easy. I have though, over the years, developed a toolkit of chronic disease management strategies which I've written about previously. These help me greatly on a daily basis: My Chronic Disease Management PlanBody Behaving Badly) My pain is … Continue reading Sleepless Night Strategies
Waiting isn’t easy, no matter what we are waiting for.2020 taught us this and 2021 has continued with the same waiting theme.As the world continues to grapple with a global health pandemic, we are all still waiting.Waiting for it to be over.Waiting for a vaccine against Coronavirus to become widely available and rolled out as … Continue reading Standing By You While You Wait
You’re probably wondering what on earth the title to this blog post means. How can you be “Blissfully Broken”? No I haven’t gone mad…..ok, maybe just a little! I’m musing about my life as it stands today. When chronic illness is complex it’s easy to feel overwhelmed. We can be diagnosed with so many adjunct … Continue reading Blissfully Broken
"You better watch out You better not cry You better not pout I'm telling you why... Santa Claus is coming to Town!!" It's Christmas Eve!! I think it's always been my most favourite day of the Christmas period ever since I was a young girl. The excitement and anticipation of Christmas Day just around the … Continue reading It’s Christmas Eve……Chronic Illness Style
I have a “Now or Never” philopsophy to life that sometimes gets me into trouble. Well, let’s face it….always gets me into trouble! Living with a physical progressive disability involves a lot of pain, lack of mobility and extreme fatigue every day. This kind of disease is constant. It doesn’t ebb and flow with flares. … Continue reading My Latest Podcast….A Pushing And Pacing Approach With Chronic Disability
I’m not talking about the weather, it is the most glorious day outside. I'm sitting in my favourite chair doing what I love most....writing. I really should make the extra effort to get out of my armchair, grab my crutches, grab my phone, grab my coffee and go outside……hmmm, can’t quite achieve that! Not with … Continue reading Musings About My Future, While Waiting For The Morning Fog To Lift
A cheerful look brings joy to the heart, and good news health to the bones. Proverbs 15:30 It's a gorgeous morning. The sun is shining, the birds are singing. I can hear neighbours chatting as they enjoy a morning walk and a cool gentle breeze is blowing through my bedroom window. I'm resting on my … Continue reading A Cheerful Approach To A Chronic Situation
I'm tired.....so tired! I'm not depressed, I'm not sad, I'm just tired. My body is exhausted from fighting with itself daily. It can't even get a divorce from it's rare disease and walk away to a struggle free life. I'm just tired. Tired of medication. All the planning and administration, that goes into a meals … Continue reading It’s OK To Be Tired
How often do you tell yourself " I should be doing such and such" or " I'd better do this or that" ? We all do it. It's like we are programmed from birth to constantly have a catalogue of "should do, must do, better do", all filed in the front of our minds for … Continue reading “I Should, I Better, I Have To” …..No, You Really Don’t!!
