True Friends In Unexpected Places

When we think of friendship, we usually think of the people in our lives who have seen us through thick and thin. The people who we have perhaps grown up with, gone to school or university with, travelled with, played sports with or worked with for years. We think of the people who we expect … Continue reading True Friends In Unexpected Places

A Chronic Disease Management Plan – Do You Have One?

At the start of a new week or month, I have a, "what's on your calendar?" segment on my Facebook Forum, Medical Musings with Friends. The idea is to take a quiet moment, to think about what lies ahead. We muse about how we are feeling, what we are concerned about, what we are excited about. … Continue reading A Chronic Disease Management Plan – Do You Have One?

Reflect and Restart

I really wasn't sure if I wanted to reflect on 2017. Was it worth reflecting on my life with chronic disease? Did I achieve anything? Did I want to relive what at times felt like days and months of overwhelming pain? One of my coping mechanisms, that helps me live well with my rare disease, … Continue reading Reflect and Restart

Thank you Sweetheart

Behind every great man is a great woman, or so the saying goes. Let's flip that on it's head a little. Behind this chronically ill wife is an amazing husband. A husband who has become a full-time carer. A husband who has gone beyond the call of duty. A husband who has become my legs, … Continue reading Thank you Sweetheart

Acts of Kindness

Living with a Chronic Disease, can at times, feel isolating and an ongoing test of endurance. You never know what great mountain awaits you when you first open your eyes every morning. That's providing you were able to sleep in the first place of course, as pain and discomfort so often try to envelope you … Continue reading Acts of Kindness

My Story

In 2010 I was in my mid 40’s, at the height of my career as an Executive Manager in a major bank. In April of 2010, I was getting ready to take 6 weeks long service leave to spend some quality time with my beautiful husband. We were going on a road trip, through South … Continue reading My Story