Shining The Light on Mitochondrial Disease with Guest Blogger – Gina Baker

One of my Facebook Forum members, Gina Baker, shared her story recently of living with Mitochondrial Disease. I was so glad she did as I knew very little about it and having a rare disease of my own, I am very keen to raise awareness of other rare diseases. I asked Gina if she would … Continue reading Shining The Light on Mitochondrial Disease with Guest Blogger – Gina Baker

It’ OK To Take An Online Break

One of the wonderful things that has come from living with a chronic disease is finding new networks and friends in the chronic illness and blogging communities. Before becoming disabled and unable to work, I had no idea about blogging and online support forums and believe it or not I never even had a Facebook … Continue reading It’ OK To Take An Online Break

Guest Blogger, Rachel Fearnley – Ponderings of a Passionate Maverick

I am really excited to introduce you all to my Guest Blogger, Rachel Fearnley. While Rachel doesn't live with a chronic illness herself, she is passionate about raising awareness of what it's like for families who live daily with someone who has a life limiting illness. Rachel is a social worker who has worked with children … Continue reading Guest Blogger, Rachel Fearnley – Ponderings of a Passionate Maverick

RA Blog Week 2017 – A Feast of Great Blogs

This week I've had the pleasure of participating in the Annual RA Blog Week. It's a wonderful event for bloggers from around the world to share their insights on what it's like living with Rheumatoid Arthritis & often other associated autoimmune diseases. Each day of the week a topic is chosen for bloggers to write … Continue reading RA Blog Week 2017 – A Feast of Great Blogs

Lifes puzzle

I am excited to introduce my new Guest Blogger, Dave Head. Dave lives with a number of Chronic diseases including, Multiple Sclerosis and he has an Ileostomy. His courage, strength and determination to live life well,in the midst of and despite of his circumstances,is truly inspiring as you will see for yourself as you read his latest post. Don’t stop there though, check out his entire blog ” Life is how you live it”
Enjoy Sam xx

Life is how you live it…

There tends to be a question that often arises once I build a friendship with another person;

“How in the hell do you stay so positive with everything you’ve gone through?”

My typical response will be “I don’t know, I just seem to.”

I have come to realize there is a far deeper explanation than this. Previously I had not put a great deal of thought into the true answer. I simply account it to moving on. As you can imagine, it is not as simple as this. Often during times of difficulty with an illness I do go into a different state of mind as I’m sure all of us do. Our daily routine of life is disrupted, depending on the circumstance this disruption will vary from mild to severe. Either way, what seemed most pressing in our lives suddenly moved down our list of importance.

I have read…

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