A Chronic Christmas Celebration….(A Few Tips to Create Your Own Unique Festive Holiday Traditions)

Looks like my husband and I made it on Santa's "good list". Santa even did an early drop off with personalised Santa sacks on the 23rd December!We are however not allowed to peek inside until Christmas morning. It even says so on Santa's sack! 😇😏🥰🎅 (yes, I am connecting with my inner child for a … Continue reading A Chronic Christmas Celebration….(A Few Tips to Create Your Own Unique Festive Holiday Traditions)

Your Ticket To A New Life…..Let Go Of What You Think Life “Should” Look Like

(An Excerpt From Chapter Three of My Book, My Medical Musings, A Story of Love, Laughter, Faith and Hope: Living with a Rare Disease) Happiness is letting go of what you think your life is supposed to look like, and celebrating it for everything that it is” – Mandy Hale What an insightful quote! There … Continue reading Your Ticket To A New Life…..Let Go Of What You Think Life “Should” Look Like

My Interview as a Guest on, “I Am Not My Pain Podcast” …..With Host Melissa Adams

I'm so excited to share with you my interview as a Guest on "I Am Not My Pain Podcast. This is part one, of a two part interview. I was so honoured to be invited by Melissa to talk about my health story, my blog, my book, my forum and even more importantly, how I … Continue reading My Interview as a Guest on, “I Am Not My Pain Podcast” …..With Host Melissa Adams

A Year Later…One Step, Two Steps…Will There Be A Third?

Some dates are forever etched in our memories. I have a few but there are two I will never forget. October 6th 2014 is the first. It was the day my femur broke.   It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that … Continue reading A Year Later…One Step, Two Steps…Will There Be A Third?

My Medical Musings….The Book, Is Available Now!

I’m so excited to announce my book is out now and published by ImagineWe Publishers. The book is a collection of my most popular blog posts, with new content included as I share my memoirs. It has been a lifelong dream to write a book and I feel incredibly blessed for the opportunity, the love, support … Continue reading My Medical Musings….The Book, Is Available Now!

Caring For The Carer

Many people with Chronic Illness require full time Carers. Often that role is filled by loved ones. Our husbands, wives, life partners, siblings, parents, children, even grandparents.Watching a loved one suffer is just so confronting. No one wants to see someone writhing in pain, or watch the person they're caring for lose their ability to … Continue reading Caring For The Carer

Self Talk….”It’ll Do” And Other Chronic Illness Chat Lines

It’ll do”“It’s good enough”“You’re doing so well”” Good job”“Time to rest”“Not going to happen today”“Maybe tomorrow”In my previous life, by which I mean life before chronic illness, I always had a whole range of “self talk” language helping me achieve my goals.They were all positive, affirmative statements like;“you can do it, you’ve got this, keep … Continue reading Self Talk….”It’ll Do” And Other Chronic Illness Chat Lines