Snap, pop and crackle…and just like that I can't move my back. I've been doing reasonably well so it's disappointing when my broken body decides to break a little more, but this is life with a crazy bone disease. I can't thank my beautiful husband enough for his love and support. When you can't do … Continue reading Love Conquers All….Even Acute and Chronic Pain
When we think of Chronic Disease, we wouldn't usually have happy thoughts or find ourselves looking forward to a bright future. Fear, horror, uncertainty and grief are generally the normal response. However, the reality of living a chronic illness life can be quite liberating, as I've surprisingly found over the past 7 years. One of … Continue reading You’ve Created A “Chronic Illness Career”….Don’t Forget To Have A Weekend!
I can cope with most things about my disability. I'm not saying it's easy, it's far from easy. I have though, over the years, developed a toolkit of chronic disease management strategies which I've written about previously. These help me greatly on a daily basis: My Chronic Disease Management PlanBody Behaving Badly) My pain is … Continue reading Sleepless Night Strategies
My beautiful Dad passed away 8 weeks ago. The initial weeks after his passing saw me encompassed in raw grief. The kind of grief constantly creeping up on you, and opening the flood gate of tears, when you least expect it. The kind of grief where you grapple to make sense of it all. When you … Continue reading “Good Grief!”
We all make decisions every day. Big decisions, small decisions. Some we are aware of and some are just automatic. When I had reasonable health, I would spend my days making business and personal decisions without much effort. Some might have kept me awake at night but not many. I never had to think about … Continue reading Along Came Chronic Illness And Life Turned Upside Down
No matter what is going on in my life there is always a constant certainty.... A cup of tea fixes everything! There is something strangely calming about putting on the kettle, taking out a pretty china cup or mug, and anticipating sitting in a comfy chair, slowly sipping this hot delight. It may be coffee, … Continue reading A Cup Of Tea Fixes Everything
(In loving memory of my precious Dad, who passed away peacefully on Easter Monday) One of my earliest childhood memories is being on the passenger ship "Aurelia". I was 3 years of age and embarking on a journey that would change the entire course of my life. I was migrating from the United Kingdom to Australia … Continue reading A Carousel Of Memories And Moments
You would be forgiven for thinking this is a Valentine’s Day post given the title I’ve chosen. Please rest assured it’s not. It’s a continuation of my musings about acceptance being the gateway to a new life. Acceptance is not a sad resignation, it’s the pathway to peace, happiness and freedom from prolonged grief. For me … Continue reading Old Loves, New Loves
Be joyful in hope, patient in affliction, faithful in prayer. (Romans 12 v 12) Is it possible to have patience in the midst of affliction? No matter the cause of affliction, no one wants to stay in a state of pain or distress or turmoil. Our immediate response in any traumatic event is to want it over … Continue reading Prayer, Patience Purpose and Pain
I would have thought being disabled, and housebound, life would go slowly. I'd have thought each day would drag and each hour would leave me wondering how to fill my time. Ha...How Wrong Was I !! How is it days, weeks, months and even years keep speeding by? What have I done to make this … Continue reading Loving “Moments” Of My Chronic Illness Life
