When we think of Chronic Disease, we wouldn't usually have happy thoughts or find ourselves looking forward to a bright future. Fear, horror, uncertainty and grief are generally the normal response. However, the reality of living a chronic illness life can be quite liberating, as I've surprisingly found over the past 7 years. One of … Continue reading You’ve Created A “Chronic Illness Career”….Don’t Forget To Have A Weekend!
In 2018, as the New Year approached, I decided to dare to dream and wrote a blog post, Let's Go Fly A Kite. The idea was to list a few things I would love to do but felt were way out of reach or were just pure imagination. I also had a small realistic list. … Continue reading My Very Own “Escape To The Country”
You would be forgiven for thinking this is a Valentine’s Day post given the title I’ve chosen. Please rest assured it’s not. It’s a continuation of my musings about acceptance being the gateway to a new life. Acceptance is not a sad resignation, it’s the pathway to peace, happiness and freedom from prolonged grief. For me … Continue reading Old Loves, New Loves
I would have thought being disabled, and housebound, life would go slowly. I'd have thought each day would drag and each hour would leave me wondering how to fill my time. Ha...How Wrong Was I !! How is it days, weeks, months and even years keep speeding by? What have I done to make this … Continue reading Loving “Moments” Of My Chronic Illness Life
How do you continue to live life to the full when your health limits everything you do? How do you cope with waiting for a reprieve in symptoms when, the reality is, no reprieve is coming? I’m not going to say there are easy answers to these questions because there definitely are not. It’s hard. … Continue reading A Full And Fulfilled Chronic Illness Life
Memories are strange things. They can arrive when you least expect them. They can bring amazing joy or they can startle you. They can cause you to quietly reflect. You can be caught smiling for apparently no reason to others around you. You can feel melancholy. You can cry when you least expect it. Memory … Continue reading A Drive Down Memory Lane ~ An Unexpected Emotional Road Trip
I'm a huge fan of pacing. It's number one on my list of key chronic illness/ pain management strategies. Pacing doesn't remove symptoms or take all my pain away. It does help to reduce some discomfort and reduces the risk of me causing an escalation of more crippling issues. Well, usually it does that!! My … Continue reading Sometimes A “Sick Day” Is Necessary, Even If You Are Already Chronically Ill
A friend recently posted a question in a Facebook Group, about ways to gain freedom in life, so you can choose how you want to live it. "What has most helped you to gain freedom in your life to choose exactly how you want to live it?" Jayne Bailey My response was one word. Acceptance. … Continue reading Is Acceptance Just Resignation?
It's nearly 3 years since my left femur snapped in two. Those first two years I can barely remember. It's a blur of surgery after surgery, hospital stay after hospital stay, recovery after recovery. Actually recovery is probably the wrong word because I haven't recovered. My left femur is still broken. It's officially diagnosed as … Continue reading The Next “Leg” of My Journey
I have been living with a series of complex medical conditions for over 6 years now. In 2014 my health deteriorated to the point of needing to medically retire. With time on my hands I decided to start this blog to help me keep track of all that was happening to me but also as … Continue reading Medical Musings with Friends