I'm a huge fan of pacing. It's number one on my list of key chronic illness/ pain management strategies. Pacing doesn't remove symptoms or take all my pain away. It does help to reduce some discomfort and reduces the risk of me causing an escalation of more crippling issues. Well, usually it does that!! My … Continue reading Sometimes A “Sick Day” Is Necessary, Even If You Are Already Chronically Ill
As a New Year gets under way it's usual to think about the year ahead and set goals both for your personal and business life and perhaps plan holidays or other adventures. I did that for years. It's summer in Australia and generally known as a holiday month. Schools are closed and many businesses are … Continue reading Plans? What Plans?
One of the hardest things about living with a chronic illness, is learning that life has to be paced. No more jumping out of bed and embracing the day with the energy of a netball team. I know that sounds like an extreme analogy but that is how I used to live. I had that kind … Continue reading Embracing Chronic Illness In a “Deliberate” Way
When I was working my husband always used to stir me about having my iPhone strapped to my ear almost 24/7. He wasn't exaggerating either! The other night while I was sitting up in bed frantically tapping away on my phone screen, I paused for a moment and looked up at my husband who was … Continue reading I Love My Phone! It’s A Chronic Illness Lifeline.
A friend recently posted a question in a Facebook Group, about ways to gain freedom in life, so you can choose how you want to live it. "What has most helped you to gain freedom in your life to choose exactly how you want to live it?" Jayne Bailey My response was one word. Acceptance. … Continue reading Is Acceptance Just Resignation?
I'm lying on my bed resting my legs and watching the sunset outside my bedroom window. It is stunning and although I'm in pain, it lifts my spirits and makes me feel very blessed to be alive. It's been a busy week. Hectic actually, well hectic for me. Nothing like my old working week looked … Continue reading The End or the Start of a New Beginning?
It's nearly 3 years since my left femur snapped in two. Those first two years I can barely remember. It's a blur of surgery after surgery, hospital stay after hospital stay, recovery after recovery. Actually recovery is probably the wrong word because I haven't recovered. My left femur is still broken. It's officially diagnosed as … Continue reading The Next “Leg” of My Journey