Where Do I Start? A Diagnosis of Myositis and So Much Is Happening …. But I Will Try An Update!

Hi Everyone, Since I last posted, our lives have been turned upside down. I think the best way to bring you the simplest update is to list the events, and then I'll chat about key issues. Here goes..... Let's start with good news: Peter had his ACAT assessment last week for 7⁷⁷Level 4 Aged Care … Continue reading Where Do I Start? A Diagnosis of Myositis and So Much Is Happening …. But I Will Try An Update!

Our Alzhiemers Rainbow …A Colourful Chaotic Time of Change

A Day In Our Life of Alzhiemers We've had a terrible night, the night before last.Lots of hail, another power outage, etc.Then my husband decided his catheter drain switch wasn't working, so he put a bulldog clip on the end of the tube. I rang the ambulance, and they came out and said it was … Continue reading Our Alzhiemers Rainbow …A Colourful Chaotic Time of Change

My Third Snippet….This Time a Health Update (August 2024)

Hi Everyone, Life has been inundated with challenge after challenge as we navigate the world of Alzhiemers Disease with Peter, and my disease is taking so many twists and turns I’m struggling to get through each day physically, and getting more and more exhausted. As you know I have made the heart breaking decision to … Continue reading My Third Snippet….This Time a Health Update (August 2024)

The Real Picture When I Say, “I’m Good.”

"My inbuilt professional persona began to surface as I looked at the phone next to me on the bed. It was inevitable. I would answer this call with a bright and upbeat greeting, no matter the real picture of searing pain and chronic disease."

You May Have a Physical Disability, But Your Home Doesn’t Need To Look Disabled Too!

One of the things I have always loved is Interior Design. After working crazy hours, when I was able to work, I would like nothing better than to spend the weekend at home. It’s always been my happy place. As a young girl I loved creating a new look in my bedroom regularly, using different … Continue reading You May Have a Physical Disability, But Your Home Doesn’t Need To Look Disabled Too!

Hard Work In Hospital

Some challenges in life hit us so hard, as we never saw them coming. Such challenges don't allow us the luxury of preparing ahead of time. They give no warning. They simply arrive! My "acute" spinal collapse , would prove to be one of the hardest challenges I have ever faced, and I've documented a … Continue reading Hard Work In Hospital

Your House, Your Comfort, Your Safe Place

I've  just been chatting with the Occupational Therapist who organised my stair lift installation. She was very impressed with how the stair lift looked in my home. Given I'm still relatively young ( and perhaps a little delusional 😊), I was relieved to have her opinion as my concern has always been that I didn't … Continue reading Your House, Your Comfort, Your Safe Place