Category: Osteopetrosis

Where Do I Start? A Diagnosis of Myositis and So Much Is Happening …. But I Will Try An Update!

~ Sam ~ 2 Comments

Hi Everyone, Since I last posted, our lives have been turned upside down. I think the best way to bring you the simplest update is to list the events, and then I'll chat about key issues. Here goes..... Let's start with good news: Peter had his ACAT assessment last week for 7⁷⁷Level 4 Aged Care … Continue reading Where Do I Start? A Diagnosis of Myositis and So Much Is Happening …. But I Will Try An Update!

Our Alzhiemers Rainbow …A Colourful Chaotic Time of Change

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A Day In Our Life of Alzhiemers We've had a terrible night, the night before last.Lots of hail, another power outage, etc.Then my husband decided his catheter drain switch wasn't working, so he put a bulldog clip on the end of the tube. I rang the ambulance, and they came out and said it was … Continue reading Our Alzhiemers Rainbow …A Colourful Chaotic Time of Change

All I Want For Christmas is……Comfort and Joy

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How can we all find comfort and joy this Christmas? I really don't have a dot point list of jolly holly answers for you. I'm not even sure I can rustle up a Ho Ho Ho!

My Third Snippet….This Time a Health Update (August 2024)

~ Sam ~ 4 Comments

Hi Everyone, Life has been inundated with challenge after challenge as we navigate the world of Alzhiemers Disease with Peter, and my disease is taking so many twists and turns I’m struggling to get through each day physically, and getting more and more exhausted. As you know I have made the heart breaking decision to … Continue reading My Third Snippet….This Time a Health Update (August 2024)

Finding Ways To Survive “Living in Limbo” with Chronic Illness

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Life isn’t always straightforward. It's a bit of a cliche, I know, but it’s so true!Eight years ago, I sat in pain with two broken legs, recovering from two major surgeries eight weeks apart. I was facing a future filled with so many “unknown” elements.At that moment, “Life isn’t straight forward”, is exactly what came … Continue reading Finding Ways To Survive “Living in Limbo” with Chronic Illness

I Can’t Believe It…My Latest Lumbar X-Ray Uncovers a Missing Diagnostic Link in My Story!

~ Sam ~ 11 Comments

Everything I've experienced now makes so much sense. I now know why, and for some reason, that knowledge removes its power over me. It's part of me rather than being something attacking me from nowhere.

An Acute Life Changing Chapter

~ Sam ~ 21 Comments

It was 3am Tuesday morning, 7th September, 2021. I desperately needed to go to the bathroom, so I rolled out of bed, the way physiotherapists had always shown me to do. I reached for my awaiting crutch and made it to the ensuite, not without pain, with my usual pain. I got back into bed … Continue reading An Acute Life Changing Chapter

Life is Full of Surprises!

~ Sam ~ 4 Comments

  It's a cliché! Life is full of surprises. We all know that and we probably all like to think we are prepared for them. Sometimes though they come when we least expect it and they are not always good. This week has been a really tough week. I was happily thinking I had 3 … Continue reading Life is Full of Surprises!

The day my femur broke!

~ Sam ~ 26 Comments

My left femur broke spontaneously on October 6th 2014. It just snapped in two, no warning, apart from pain at the site for a few weeks, it just happened!! From a medical perspective it is a pathological break. We now know I have a rare genetic bone disease. It's The Strongest Bone In Your Body....It … Continue reading The day my femur broke!