The term "Rare Disease" suggests unknown territory, complications and no easy answers. That terminology definitely describes my rare bone disease. My Orthopaedic Specialist appointment today didn't fully deliver on my great expectations but on some levels it did. It certainly delivered a sense of direction and further understanding of what it means to live with … Continue reading Accepting Reality
Category: Pain
Joy in the Morning
I have just had the night from hell. Pain has soared through every bone, muscle and joint in my body as my bone disease attacks from every angle. I woke from a deep sleep screaming at 2am, causing my husband to jolt upright and run to my side. I couldn't move any limb. I was … Continue reading Joy in the Morning
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The Next “Leg” of My Journey
It's nearly 3 years since my left femur snapped in two. Those first two years I can barely remember. It's a blur of surgery after surgery, hospital stay after hospital stay, recovery after recovery. Actually recovery is probably the wrong word because I haven't recovered. My left femur is still broken. It's officially diagnosed as … Continue reading The Next “Leg” of My Journey
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From Chaos to Calm
I've had a week of surprises. I should be used to the unexpected by now and generally I am. I take the shocks and twists and turns my body throws at me in my stride most days, most weeks. This week felt different though. Two weeks ago I felt a snap in my left foot. … Continue reading From Chaos to Calm
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There is some Good News!!
Finally there is some good news!! I saw my Orthopaedic Surgeon yesterday to review my latest x-rays and discuss the increased pain in my left non union broken femur. So wait for it.....My leg seems to be suddenly attempting to make new bone at the break site, despite the bone graft my Surgeon performed 5 months ago … Continue reading There is some Good News!!
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To Laugh or Cry?
Yesterday I had a really interesting appointment with my Orthopaedic Surgeon. An interesting appointment indeed! It was one of those when you just don't know whether to laugh or cry. My husband and I have a great relationship with my Surgeon and he knows I understand the ins and outs of my bone disease as … Continue reading To Laugh or Cry?
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The day my femur broke!
My left femur broke spontaneously on October 6th 2014. It just snapped in two, no warning, apart from pain at the site for a few weeks, it just happened!! From a medical perspective it is a pathological break. We now know I have a rare genetic bone disease. It's The Strongest Bone In Your Body....It … Continue reading The day my femur broke!
My Medical Musings 