Ultimately, it doesn’t matter what day it is.It matters that I make the most of every single day and make the moments within the day count. It matters that I don’t waste time being discontent about my circumstances.
Category: Patient Advocacy
Looking For The Missing Puzzle Piece
You know the feeling of completing a jigsaw puzzle only to find a piece is missing?Chronic and complex illness is so often like this.
Twists, Turns and Treading Water
As a patient advocate, I am often called, inspiring, motivating, and full of strength despite my adversities. The truth is, most days, I am just treading water.
Why Do We Think We Can Do More Than We Are Capable Of? Why Don’t We Just Listen To Our Bodies?
How often do you tell yourself , "I should be doing such and such” or ” I’d better do this or that” ? We all do it. It’s like we are programmed from birth to constantly have a catalogue of, “should do, must do, better do”, all filed in the front of our minds for … Continue reading Why Do We Think We Can Do More Than We Are Capable Of? Why Don’t We Just Listen To Our Bodies?
To Share or Not To Share? That is the Question….But What’s the Answer?
As a writer, it’s a question I constantly ask myself. How much is too much? I always want to find the balance between sharing just enough about my own chronic illness/life experiences, so I can connect with my readers, however I don’t want my story to come across as needing a response or to concern people.
Our Tapestry Of Life – Another New Year Begins
Have you looked closely at the back of a tapestry? Generally, they are full of threads in a bit of a jumble. It’s hard to make out what the image is from this viewpoint. You don’t have to see the whole tapestry. You just have to make the first stitch!
A New Year, A Private Focus, and Blogging Off…Not Goodbye, but See You Later!
In 2024, I'll be cutting back and just publishing a blog post when I feel passionate about a topic or need to give an update on significant life events. I'll maybe publish a podcast every few months, but no promises
Hospital Hijack and a Chronic Illness Christmas
A True Christmas Can Never Be Cancelled But It Can Be Different
Learning to Reclaim “Me”!
I need time to have fun again, to block out all the "have too's" and spend blocks of time feeling free to focus on unimportant things, trivial things, moments of not worrying about commitments, life stresses etc.
I Never Imagined I Would Have To Do This
I never thought I would need a Go Fund me account but I realise there are times in our lives when we simply need to ask for help from a "village" of people, who are each able to assist just a little, so we can raise just enough.