As a patient advocate, I am often called, inspiring, motivating, and full of strength despite my adversities. The truth is that most days, I am just treading water.
Category: Patient Advocates
Embracing The Chronic Disease Circle of Change
(Warning: Some images in this blog post may be confronting) My approach to any life changing event always starts with making time to stop and think. It’s crucial to be deliberate and focused when dealing with change.
To Share or Not To Share? That is the Question.
As a writer, it's a question I constantly ask myself. My aim is to ensure no one is left guessing and I reduce the risk of misunderstanding.
Taking Control Over My Calendar Catastrophe …Time For Some Annual Leave!
Have you looked at your Calendar at the start of a month and thought to yourself, ” What on earth was I thinking. I can’t possibly do all that!” I’m sure I’m not alone in this exclamation. As I scrolled through my calendar on my phone for the month ahead, I felt physically sick. It was … Continue reading Taking Control Over My Calendar Catastrophe …Time For Some Annual Leave!
A Personal Letter from Sam….My Health and Life Update and an Apology.
Hi Everyone, I recently wrote a letter to the members of my support forum, Medical Musings with Friends . I wanted to apologise for being so quiet with replying to their comments on the forum, and not commenting on posts in general lately. I've managed to schedule daily segments to encourage community and discussion, but … Continue reading A Personal Letter from Sam….My Health and Life Update and an Apology.
Announcing My “Virtual Book Tour”
Hi Everyone, I'm really excited to announce I've decided to do a "Virtual Book Tour" of sorts, through my Podcast, Medical Musings with Sam. I recorded a Podcast episode this week called a Virtual Book Tour and Being Authentic. In this episode I explain why I'm doing a Virtual Tour and why I'm not releasing … Continue reading Announcing My “Virtual Book Tour”
The Authentic Voice
After writing my book I've been contemplating the different forms of communication within the"My Medical Musings" brand. The blog, the book, the podcast are all me, but all a different reflection of my voice. My online FB forum support group, is also a reflection of my voice. It's less about my personal thoughts, it's more … Continue reading The Authentic Voice
My Medical Musings….The Book, Is Available Now!
I’m so excited to announce my book is out now and published by ImagineWe Publishers. The book is a collection of my most popular blog posts, with new content included as I share my memoirs. It has been a lifelong dream to write a book and I feel incredibly blessed for the opportunity, the love, support … Continue reading My Medical Musings….The Book, Is Available Now!
Carparks, A Recliner And A Telephone
You may read this blog post title with a sense of bewilderment. You may be wondering where on earth am I going with this and what on earth has any of it got to do with chronic disease and disability! Well, in my world these three things, Carparks, a Recliner and a Telephone, have all … Continue reading Carparks, A Recliner And A Telephone
Caring For The Carer
Many people with Chronic Illness require full time Carers. Often that role is filled by loved ones. Our husbands, wives, life partners, siblings, parents, children, even grandparents.Watching a loved one suffer is just so confronting. No one wants to see someone writhing in pain, or watch the person they're caring for lose their ability to … Continue reading Caring For The Carer