Ultimately, it doesn’t matter what day it is.It matters that I make the most of every single day and make the moments within the day count. It matters that I don’t waste time being discontent about my circumstances.
We need a holiday, but routine and familiarity are important for anyone living with Alzheimers, so going away is not an option.
I didn’t realise how much resilience and courage I would need to publish my memoirs and even just to blog about my chronic illness journey. I knew I wanted to share my story to help others, but to do so really does make you vulnerable.
I'm catching my breath with a cuppa to pause and ponder. So much has been going on in recent months. New diagnoses, flares of old diagnoses, my husband dealing with his own health battle, including a trip to ER and hospital admission, and the list goes on.
You know the feeling of completing a jigsaw puzzle only to find a piece is missing?Chronic and complex illness is so often like this.
As a patient advocate, I am often called, inspiring, motivating, and full of strength despite my adversities. The truth is, most days, I am just treading water.
How often do you tell yourself , "I should be doing such and such” or ” I’d better do this or that” ? We all do it. It’s like we are programmed from birth to constantly have a catalogue of, “should do, must do, better do”, all filed in the front of our minds for … Continue reading Why Do We Think We Can Do More Than We Are Capable Of? Why Don’t We Just Listen To Our Bodies?
Have you looked closely at the back of a tapestry? Generally, they are full of threads in a bit of a jumble. It’s hard to make out what the image is from this viewpoint. You don’t have to see the whole tapestry. You just have to make the first stitch!
Trying to go away when health is complex can be incredibly stressful. A holiday at home could be the perfect solution.
Perhaps chronic illness is giving me a Christmas gift. The gift of time. Time to stop. Time to get out of the rat race of life. Time to reconnect with what really matters in life.
My Medical Musings 