Ultimately, it doesn’t matter what day it is.It matters that I make the most of every single day and make the moments within the day count. It matters that I don’t waste time being discontent about my circumstances.
For someone with a body failing at every opportunity, the joy and hope Easter offers is one day I will have a new life in heaven and a new body. Imagine no more sorrow or pain. How beautiful and what amazing grace to receive such a gift. At Christmas, we so easily celebrate the birth … Continue reading A Messy Easter
I'm catching my breath with a cuppa to pause and ponder. So much has been going on in recent months. New diagnoses, flares of old diagnoses, my husband dealing with his own health battle, including a trip to ER and hospital admission, and the list goes on.
Stop everything. Do not pass any “Go” signs, or I will be going immediately to ER and paying $200 for the privilege!
Everything I've experienced now makes so much sense. I now know why, and for some reason, that knowledge removes its power over me. It's part of me rather than being something attacking me from nowhere.
In 2024, I'll be cutting back and just publishing a blog post when I feel passionate about a topic or need to give an update on significant life events. I'll maybe publish a podcast every few months, but no promises
Perhaps chronic illness is giving me a Christmas gift. The gift of time. Time to stop. Time to get out of the rat race of life. Time to reconnect with what really matters in life.
In this podcast episode, I tell the full story of why we have needed to fund raise. I discuss the overall experience of stepping outside of our comfort zone and the varying reactions of others. Plus, the meaning behind a simple phrase, told to me by a dear old lady when I was sweet 16, that connects this entire new journey.
I never thought I would need a Go Fund me account but I realise there are times in our lives when we simply need to ask for help from a "village" of people, who are each able to assist just a little, so we can raise just enough.
Every now and again, I wake up to a "Chronic Illness Catastrophe Day." These are days that happen to all of us with chronic illness, and I'm on a quest to work out how best to manage them once and for all!
My Medical Musings 