A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
Life isn't always fun. It will always have highs and lows. Times when we are ecstatic. Times when we are happy. Times when we are content. Times when we are melancholy. Times when we are bored. Times when we just have to deal with drudgery. I'm sitting in the "dealing with drudgery" category at the … Continue reading Dealing With Daily Drudgery
I'm not afraid of storms, for I'm learning how to sail my ship.Louisa May Alcott (Author of "Little Women") I always think we have a choice when faced with "storms of life". We can bunker down and wait for the storm to pass, or we can continue to live, albeit with impediments, and find a … Continue reading Sailing Through Storms
In 2020, I launched a new venture....my Podcast Medical Musings With Sam. Firstly I want to thank you all so much for your support. This has been one of the most rewarding, emotionally challenging adventures, I’ve ever tackled. Why? I think because it’s caused me to really go down memory lane in a way I wasn’t … Continue reading Listen To Your Own Story
I can cope with most things about my disability. I'm not saying it's easy, it's far from easy. I have though, over the years, developed a toolkit of chronic disease management strategies which I've written about previously. These help me greatly on a daily basis: My Chronic Disease Management PlanBody Behaving Badly) My pain is … Continue reading Sleepless Night Strategies
"Hello, you're back again, so nice to see you, how are you?" You'd be forgiven for thinking this warm greeting was being given by a friend, a colleague, or a local shop owner who I'd known for years. This was the greeting I received by the Radiologist at my hospital, when I arrived for my … Continue reading MRI Marathon
When we have chronic illness, our minds are quickly programmed to think about all the things we can no longer do. Doctors, allied health professionals, family and friends, can easily feed us messages which concur with our “I can’t do it” mindset. Don’t get me wrong, there is lots we can’t do when living with … Continue reading “You Sound And Look So Well!!”
We all make decisions every day. Big decisions, small decisions. Some we are aware of and some are just automatic. When I had reasonable health, I would spend my days making business and personal decisions without much effort. Some might have kept me awake at night but not many. I never had to think about … Continue reading Along Came Chronic Illness And Life Turned Upside Down
"It'll do" "It's good enough" "You're doing so well" " Good job" "Time to rest" "Not going to happen today" "Maybe tomorrow" In my previous life, by which I mean life before chronic illness, I always had a whole range of "self talk" language helping me achieve my goals. They were all positive, affirmative statements … Continue reading Self Talk….”It’ll Do” And Other Chronic Illness Chat Lines
“Life is too short, take nothing for granted” Catch phrases roll off our tongues at one time or another. I hazard a guess, they have a slightly different meaning for all of us. On my Facebook Support Group, we often have a segment called “Thankful Thursday". Members share a few things they are grateful for … Continue reading Life Is Too Short Not To Be Grateful !
This week the world is mourning the death of Prince Philip, Duke of Edinburgh. Closer to home, I am mourning the death of my precious Dad. The Royal Family and I are worlds apart on so many levels, yet grief is something no one escapes in this life. At the end of the day we … Continue reading As The World Mourns…
