Ultimately, it doesn’t matter what day it is.It matters that I make the most of every single day and make the moments within the day count. It matters that I don’t waste time being discontent about my circumstances.
As a patient advocate, I am often called, inspiring, motivating, and full of strength despite my adversities. The truth is that most days, I am just treading water.
What I didn’t realise was how much resilience and courage I would need to publish my memoirs and even just to blog about my chronic illness journey. I knew I wanted to share my story to help others, but to do so really does make you vulnerable.
I don’t want to be a prisoner to my disease. I want to scale whatever heights I can safely push, and ultimately I’m the only one who can decide my limits.
For someone with a body failing at every opportunity, the joy and hope Easter offers is one day I will have a new life in heaven and a new body. Imagine no more sorrow or pain. How beautiful and what amazing grace to receive such a gift. At Christmas, we so easily celebrate the birth … Continue reading A Messy Easter
I choose to be happy despite the cross of chronic illness. In fact, I have found I can be joyful because of my chronic illness!!
As Christmas Day fast approaches I imagine most of us, in the chronic illness community, are musing about what we want to realistically achieve over the holiday period. For those of us with chronic disease it can be an incredibly overwhelming time. Just trying to be happy for others, when your body is screaming at … Continue reading Have Yourself A Merry Little “Chronic Illness” Christmas!
Every now and again it’s really good to stop and take stock.The end of the year, and the lead up to Christmas, is a perfect time to let go of a few things and make some space to slow down a little.After all, it is supposed to be the season of “Comfort and Peace”, as … Continue reading Blogging Off Until 2023…But First A Look At My Writing Year In Review
(An Excerpt From Chapter Three of My Book, My Medical Musings, A Story of Love, Laughter, Faith and Hope: Living with a Rare Disease) Happiness is letting go of what you think your life is supposed to look like, and celebrating it for everything that it is” – Mandy Hale What an insightful quote! There … Continue reading Your Ticket To A New Life…..Let Go Of What You Think Life “Should” Look Like
If you constantly question your reality and worry about the future, you are not alone. Last year I was honoured to be invited to team with The Mighty to write an email newsletter, focusing on dealing with the “What If’s” of Life. I agreed in the hope my experience of living with a rare progressive disease, along … Continue reading Right Now I’m Thinking…What If?
My Medical Musings 