“Do I Get Fries With That?” Dealing With Chronic Illness Side Dishes!

I thought my body couldn't possibly surprise me anymore. I thought I had a good handle on the reality of my diseases and on so many levels I do! I wrote a blog post recently, called "Sending The What Ifs Of Life Packing" It's all about focusing on "What Is" rather than "What If". So … Continue reading “Do I Get Fries With That?” Dealing With Chronic Illness Side Dishes!

The “Chronic Illness” Law of Diminishing Returns

My title might suggest a study in economics but rest assured it is not where I am heading with this. The Law of Diminishing Returns Refers to a point at which the level of  benefits gained is less than the amount of money or energy invested. When you live with chronic illness, over time your expectations, … Continue reading The “Chronic Illness” Law of Diminishing Returns

Letting Go Of What You Think Life “Should Be”

"Happiness is letting go of what you think your life is supposed to look like, and celebrating it for everything that it is" – Mandy Hale What an insightful quote! There is so much simplicity to it yet it is full of depth and wisdom. When we live with Chronic Illness, it's very easy to … Continue reading Letting Go Of What You Think Life “Should Be”

It’s OK To Be Tired

I'm tired.....so tired! I'm not depressed, I'm not sad, I'm just tired. My body is exhausted from fighting with itself daily. It can't even get a divorce from it's rare disease and walk away to a struggle free life. I'm just tired. Tired of medication. All the planning and administration, that goes into a meals … Continue reading It’s OK To Be Tired

Happy 6th Stomaversary to Rudolph and Me!

I can’t believe today, on the 11th November, my beloved stoma, affectionately called Rudolph, is turning 6! For those of you without a stoma it may seem a strange thing to celebrate. While it was life changing, it was also life saving and I will be forever grateful for the day of my stoma surgery. … Continue reading Happy 6th Stomaversary to Rudolph and Me!