After a week of appointments and feeling absolutely shattered, I looked at my calendar for the next day and it revealed a blank page. I breathed a huge sigh of relief. Most of my days are a blank page. This particular week had been an exception to the rule and I was suffering for it. … Continue reading Climbing Mountains With My Chronic Illness Friends
I'm tired.....so tired! I'm not depressed, I'm not sad, I'm just tired. My body is exhausted from fighting with itself daily. It can't even get a divorce from it's rare disease and walk away to a struggle free life. I'm just tired. Tired of medication. All the planning and administration, that goes into a meals … Continue reading It’s OK To Be Tired
How often do you tell yourself " I should be doing such and such" or " I'd better do this or that" ? We all do it. It's like we are programmed from birth to constantly have a catalogue of "should do, must do, better do", all filed in the front of our minds for … Continue reading “I Should, I Better, I Have To” …..No, You Really Don’t!!
How do you continue to live life to the full when your health limits everything you do? How do you cope with waiting for a reprieve in symptoms when the reality is, no reprieve is coming? I’m not going to say there are easy answers to these questions because there definitely are not. It’s hard. … Continue reading A Full And Fulfilled Chronic Illness Life
It's New Years Eve. 2020 is literally around the corner! A new year awaits. Will it be a good year, a difficult year, a happy year, a sad year? One thing is certain, none of us really know. As I look back over my life, every year has had highs and lows. Mostly my life … Continue reading You Don’t Have To See The Whole Staircase
I was once called "Stoic", when I was working, because of the way I got on with my chronic health issues without fuss. I was always cheerful, smiling and putting others first. I kept working full time with that stoic attitude and nature, until my body physically would no longer let me. Even with a … Continue reading Stoic By Nature…..Just Not For A Moment!
As 2019 is coming to a close, I have been reflecting on my writing year. I've so enjoyed blogging plus writing articles for The Mighty So this blog post is simply to say "Thank you"! Thank you for reading. Thank you for sharing my work on Twitter, Pinterest and Facebook. Thank you for reaching out … Continue reading Thank You To All My Readers….My Top 2019 Blog Posts And Articles As Voted By You!!
I can’t believe today, on the 11th November, my beloved stoma, affectionately called Rudolph, is turning 6! For those of you without a stoma it may seem a strange thing to celebrate. While it was life changing, it was also life saving and I will be forever grateful for the day of my stoma surgery. … Continue reading Happy 6th Stomaversary to Rudolph and Me!
Have you looked at your Calendar at the start of a month and thought to yourself, " What on earth was I thinking. I can't possibly do all that!" I'm sure I'm not alone in this exclamation. As I scrolled through my calendar on my phone for the month ahead, I felt physically sick. It … Continue reading Calendar Chaos
I can cope with most things about my disability. I'm not saying it's easy. It's far from easy but I have a toolkit of chronic disease management strategies, I've written about in the past, that help me on a daily basis......(My Chronic Disease Management Plan and Body Behaving Badly) My pain is unrelenting during the day but … Continue reading Sleepless Night Strategies