How do you continue to live life to the full when your health limits everything you do? How do you cope with waiting for a reprieve in symptoms when, the reality is, no reprieve is coming? I’m not going to say there are easy answers to these questions because there definitely are not. It’s hard. … Continue reading A Full And Fulfilled Chronic Illness Life
At the start of a new week or month, I have a, “Celebrations Milestones and Memories” segment on my Facebook Forum, Medical Musings with Friends. The idea is to take a quiet moment, to think about what lies ahead. We muse about how we are feeling, what we are concerned about, what we are excited about. … Continue reading Managing The Chronic Disease Curveball
When I was working my husband always used to stir me about having my mobile phone strapped to my ear, or in my hand, almost 24/7. He wasn't exaggerating either! The other night while I was lying in bed frantically tapping away on my phone screen, I paused for a moment and looked up at … Continue reading I Love My Phone!! It’s A Chronic Illness Lifeline
One of the wonderful things living with a chronic disease has brought into my life, is finding new networks and friends in the chronic illness and blogging communities. Before becoming disabled and unable to work, I had no idea about blogging or online support forums. I never even had a Facebook account. Fast forward to … Continue reading It’s OK To Take An Online Break
As a little girl, around the age of 5 or 6, my parents taught me how to answer our home telephone. No mobiles in those days. A good old fashioned 1970’s styled phone where you physically needed to dial a number. I can still remember my answering script to this day. I would eagerly rush … Continue reading I’m Good…..My Body Is Misbehaving Though
After a week of appointments and feeling absolutely shattered, I looked at my calendar for the next day and it revealed a blank page. I breathed a huge sigh of relief. Most of my days are a blank page. This particular week had been an exception to the rule and I was suffering for it. … Continue reading Climbing Mountains With My Chronic Illness Friends
I'm tired.....so tired! I'm not depressed, I'm not sad, I'm just tired. My body is exhausted from fighting with itself daily. It can't even get a divorce from it's rare disease and walk away to a struggle free life. I'm just tired. Tired of medication. All the planning and administration, that goes into a meals … Continue reading It’s OK To Be Tired
How often do you tell yourself " I should be doing such and such" or " I'd better do this or that" ? We all do it. It's like we are programmed from birth to constantly have a catalogue of "should do, must do, better do", all filed in the front of our minds for … Continue reading “I Should, I Better, I Have To” …..No, You Really Don’t!!
It's New Years Eve. 2020 is literally around the corner! A new year awaits. Will it be a good year, a difficult year, a happy year, a sad year? One thing is certain, none of us really know. As I look back over my life, every year has had highs and lows. Mostly my life … Continue reading You Don’t Have To See The Whole Staircase
I was once called "Stoic", when I was working, because of the way I got on with my chronic health issues without fuss. I was always cheerful, smiling and putting others first. I kept working full time with that stoic attitude and nature, until my body physically would no longer let me. Even with a … Continue reading Stoic By Nature…..Just Not For A Moment!