As a patient advocate, I am often called, inspiring, motivating, and full of strength despite my adversities. The truth is that most days, I am just treading water.
Category: Support Forums
Cancel The Day, Cancel a Few Days….Just Remember It’s Important To Take Time To Look After Yourself.
There is always the temptation, when appointments or commitments are cancelled, to fill the time with other things. I know I can't, even though my head is always full of great ideas. My body is screaming at me. I have to listen to it.
Reflecting on Resilience, Courage, and My Chronic Illness Journey.
What I didn’t realise was how much resilience and courage I would need to publish my memoirs and even just to blog about my chronic illness journey. I knew I wanted to share my story to help others, but to do so really does make you vulnerable.
Celebrating Good News, Feeling Sad, Facing Change? There’s Only One Solution… A Cup of Tea!
There is something strangely calming about putting on the kettle, taking out a pretty china cup or mug, anticipating sitting in a comfy chair, and slowly sipping this hot delight.
The Wound Doctor’s & Co Podcast….My Interview Discussing Chronic Illness and the Doctor Patient Relationship.
47% of Australians live with a chronic disease, and Samantha Moss is one of them. We talk to her about how she manages her wounds, how she stays positive, and how health professionals can better care for people with long-term conditions
Embracing The Chronic Disease Circle of Change
(Warning: Some images in this blog post may be confronting) My approach to any life changing event always starts with making time to stop and think. It’s crucial to be deliberate and focused when dealing with change.
Can You Live With Chronic Illness And Still Be Optimistic?
I choose to be happy despite the cross of chronic illness. In fact, I have found I can be joyful because of my chronic illness!!
To Share or Not To Share? That is the Question.
As a writer, it's a question I constantly ask myself. My aim is to ensure no one is left guessing and I reduce the risk of misunderstanding.
Taking Time to Reflect
Turning off Netflix and listening to the silence filling the room, can be so relaxing. Suddenly the birds outside can be heard tweeting, rather than Twitter chirping at you with a notification on your phone.
What Does A “Chronically Ill Contented Life” Really Look Like?
Rather than expecting a perfect life filled with halcyon days, I choose to love and cherish the moments of my life where I can engage with some of the activities I enjoy.