A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
In 2020, I launched a new venture....my Podcast Medical Musings With Sam. Firstly I want to thank you all so much for your support. This has been one of the most rewarding, emotionally challenging adventures, I’ve ever tackled. Why? I think because it’s caused me to really go down memory lane in a way I wasn’t … Continue reading Listen To Your Own Story
Pain can’t just be ignored. Disease can’t just be ignored. People with disease and pain can’t just be forgotten. I’m not alone in suffering horrific daily pain. So many in society struggle every day. Some manage to work or interact with the wider community in some way. Others like me, live a permanently reclusive life … Continue reading A Peek Through My Window Of Pain
When we think of Chronic Disease, we wouldn't usually have happy thoughts or find ourselves looking forward to a bright future. Fear, horror, uncertainty and grief are generally the normal response. However, the reality of living a chronic illness life can be quite liberating, as I've surprisingly found over the past 7 years. One of … Continue reading You’ve Created A “Chronic Illness Career”….Don’t Forget To Have A Weekend!
This week on my forum Medical Musings with Friends , I posted a segment called "Any Questions?" I wanted to invite my forum members to ask me anything about my life, my disease, my writing etc. It was an open book kind of segment. The recurring question, or theme to the questions, was; "how do … Continue reading Any Questions?
Waiting isn’t easy, no matter what we are waiting for.2020 taught us this and 2021 has continued with the same waiting theme.As the world continues to grapple with a global health pandemic, we are all still waiting.Waiting for it to be over.Waiting for a vaccine against Coronavirus to become widely available and rolled out as … Continue reading Standing By You While You Wait
“Life is too short, take nothing for granted” Catch phrases roll off our tongues at one time or another. I hazard a guess, they have a slightly different meaning for all of us. On my Facebook Support Group, we often have a segment called “Thankful Thursday". Members share a few things they are grateful for … Continue reading Life Is Too Short Not To Be Grateful !
No matter what is going on in my life there is always a constant certainty.... A cup of tea fixes everything! There is something strangely calming about putting on the kettle, taking out a pretty china cup or mug, and anticipating sitting in a comfy chair, slowly sipping this hot delight. It may be coffee, … Continue reading A Cup Of Tea Fixes Everything
It’s no secret I love writing. Throughout my career the thing I loved the most was communication, both written and verbal. To me communication is about connecting, making connections, renewing connections, allowing people into my life. It's certainly been my goal with blogging and writing articles, for a number of publications, including The Mighty. My … Continue reading Dear Diary…..
I would have thought being disabled, and housebound, life would go slowly. I'd have thought each day would drag and each hour would leave me wondering how to fill my time. Ha...How Wrong Was I !! How is it days, weeks, months and even years keep speeding by? What have I done to make this … Continue reading Loving “Moments” Of My Chronic Illness Life
There are times I yearn to write but words fail me. Is it because I am overthinking? Is it because I'm too tired and in too much pain? Or is it because if I wrote what I needed to write, it may be too raw, too much for my readers and even too much for … Continue reading Straight From My Heart
