Living with an idiopathic autoimmune disease basically means I never quite know what's around the corner. Could be exciting if it wasn't so exhausting! Yesterday was one of those days! I had been feeling off colour for about 10 days and then started to spike a low grade fever with swollen glands. None of that … Continue reading Dentistry Disappointment
How Do You Cope?
I have been asked this question many times. Friends and acquaintances are always so relieved when they see me in person as I look so normal. I don't look sick and some of that is due to my coping mechanisms! It has also been well documented about the fact that autoimmune diseases, in general, don't cause … Continue reading How Do You Cope?
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Health Insurance….the joy of being on hold!
I have to go to the dentist next week and while my Dentist is lovely I really hate having to go. I'm not sure which is worse, the invasion in my mouth or whether the fact she always finds something catastrophically wrong with my teeth (thanks to the idiopathic nature of my disease) or the scary bill at the end … Continue reading Health Insurance….the joy of being on hold!
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Why Name My Stoma Rudolph?
Having a stoma requires a change of life and a change of mindset. Accepting that you now have to manage a normal bodily function a little differently is half the battle. For many people that can be an extremely difficult leap as they may have received their stoma in an emergency situation due to severe … Continue reading Why Name My Stoma Rudolph?
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I think I can, I think I can….oops….maybe not!
Sometimes my head thinks I'm wonder woman & decides to run ahead with a list of "things to do" without actually consulting with the rest of my body to see if in fact any movement at all is possible. The consequences of my head taking over, is that my body tries to keep up & … Continue reading I think I can, I think I can….oops….maybe not!
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Lets talk Medication and Rheumatoid Athritis
For many people a diagnosis of Rheumatoid Arthritis (RA) can take years to arrive at. I was fortunate in that it only took a few months following severe symptoms before my blood tests showed that I had positive Anti-CCP antibodies. These antibodies are only present at high levels in people with the more severe form of RA so my Specialists were … Continue reading Lets talk Medication and Rheumatoid Athritis
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It’s A Rare Genetic Bone Disease
It's 11 weeks post my left femur break and surgery to insert a titanium rod from my hip to my knee. I am still on 2 crutches and will be for another 3 months, at least. My Surgeon is pleased with my progress but keeps warning me this is a long slow process with healing expected to take 18 … Continue reading It’s A Rare Genetic Bone Disease
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Stoma Nurse Visit
Today I visited my stoma nurse. I had my colostomy surgery 14 months ago and have really been blessed with a smooth ride in terms of adjusting to having a stoma. Today's visit was the first time I've seen a stoma nurse since my surgery and it was really just a nice chat about how I … Continue reading Stoma Nurse Visit
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My Story
In 2010 I was in my mid 40’s, at the height of my career as an Executive Manager in a major bank. In April of 2010, I was getting ready to take 6 weeks long service leave to spend some quality time with my beautiful husband. We were going on a road trip, through South … Continue reading My Story
My Medical Musings 