I’m not talking about the weather, it is the most glorious day outside. I'm sitting in my favourite chair doing what I love most....writing. I really should make the extra effort to get out of my armchair, grab my crutches, grab my phone, grab my coffee and go outside……hmmm, can’t quite achieve that! Not with … Continue reading Musings About My Future, While Waiting For The Morning Fog To Lift
How do you continue to live life to the full when your health limits everything you do? How do you cope with waiting for a reprieve in symptoms when, the reality is, no reprieve is coming? I’m not going to say there are easy answers to these questions because there definitely are not. It’s hard. … Continue reading A Full And Fulfilled Chronic Illness Life
At the start of a new week or month, I have a, “Celebrations Milestones and Memories” segment on my Facebook Forum, Medical Musings with Friends. The idea is to take a quiet moment, to think about what lies ahead. We muse about how we are feeling, what we are concerned about, what we are excited about. … Continue reading Managing The Chronic Disease Curveball
When I was working my husband always used to stir me about having my mobile phone strapped to my ear, or in my hand, almost 24/7. He wasn't exaggerating either! The other night while I was lying in bed frantically tapping away on my phone screen, I paused for a moment and looked up at … Continue reading I Love My Phone!! It’s A Chronic Illness Lifeline
For some time I've really admired people who Vlog. It's such a great way to interact with followers and convey, in an easy relaxed way, a message which could get lost in the written word of blogging. It's also terrifying! I've always been used to Public Speaking throughout my working life. Somehow that was different. … Continue reading Dipping My Toe In The World of Vlogging
The World is dealing with the unknown. We are all dealing with the unknown. Coronavirus, or COVID-19, is taking us on a journey we have never experienced before, certainly not in our lifetimes. Ultimately we are having to deal with change on a huge scale. Change causes fear and fear causes responses in ourselves and … Continue reading A World Changing Course – Entering The Unknown
"Shall we, shan't we?" "Do we need that? Should we part with those?" "Will this piece fit? Oh no, it will just look all wrong there!" A year ago, this conversation had been on a continuum between my husband and I for weeks. Yes, we were moving house and it was the reason why we … Continue reading Letting Go ~ Out With The Old, In With The New
When you've lived with chronic disease for a while, you'll inevitably arrive at a stage in your journey, where you feel you've come full circle. Perhaps, you feel you are constantly going around in circles. This is often the experience many patients have when first seeking a diagnosis. It can be a confusing and distressing … Continue reading Riding The Chronic Illness Carousel
When you've lived with Chronic Illness for a number of years, at some point, you adjust to a new way of living. You eventually find a new norm. While you might expect a few highs, lows and some disease flares along the way, generally life evolves into a settled and comfortable pattern. Until it suddenly, … Continue reading “Would You Like A Second Opinion?”… Surreal And Scary!
Sometimes, despite already dealing with an established list of chronic diseases, our bodies decide to throw us a curveball. Over the past 7 weeks I've been dealing with a tongue ulcer from hell. It's like nothing I've ever seen or had before. Any mouth or tongue ulcers I've had in the past have cleared up … Continue reading A Tongue Testing Tale
My Medical Musings 