(Warning: Some images in this blog post may be confronting) My approach to any life changing event always starts with making time to stop and think. It’s crucial to be deliberate and focused when dealing with change.
Turning off Netflix and listening to the silence filling the room, can be so relaxing. Suddenly the birds outside can be heard tweeting, rather than Twitter chirping at you with a notification on your phone.
(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading My Chronic Illness Rule Book ….(My Four Day Rule)
When you've lived with Chronic Illness for a number of years, at some point, you adjust to a new way of living. You eventually find a new norm. While you might expect a few highs, lows and some disease flares along the way, generally life evolves into a settled and comfortable pattern. Until it suddenly, … Continue reading “Would You Like A Second Opinion?”… Surreal And Scary!
Twas the night before Bone Marrow biopsy and all through the hospital the patients were stirring demanding a nurse... That's about as poetic as I can get tonight. Tomorrow is a big day and the day after is even bigger. My stint in hospital 2 weeks ago resulted in an MRI on my right femur … Continue reading Twas the Night Before Biopsy
My Medical Musings 