(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading Where’s The “Off The Charts” Rule Book?
When you've lived with Chronic Illness for a number of years, at some point, you adjust to a new way of living. You eventually find a new norm. While you might expect a few highs, lows and some disease flares along the way, generally life evolves into a settled and comfortable pattern. Until it suddenly, … Continue reading “Would You Like A Second Opinion?”… Surreal And Scary!
Twas the night before Bone Marrow biopsy and all through the hospital the patients were stirring demanding a nurse... That's about as poetic as I can get tonight. Tomorrow is a big day and the day after is even bigger. My stint in hospital 2 weeks ago resulted in an MRI on my right femur … Continue reading Twas the Night Before Biopsy