A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
Some challenges in life hit us so hard, as we never saw them coming. Such challenges don't allow us the luxury of preparing ahead of time. They give no warning. They simply arrive! My "acute" spinal collapse , would prove to be one of the hardest challenges I have ever faced, and I've documented a … Continue reading Hard Work In Hospital
It was 3am Tuesday morning, 7th September, 2021. I desperately needed to go to the bathroom, so I rolled out of bed, the way physiotherapists had always shown me to do. I reached for my awaiting crutch and made it to the ensuite, not without pain, with my usual pain. I got back into bed … Continue reading An Acute Life Changing Chapter
"Hello, you're back again, so nice to see you, how are you?" You'd be forgiven for thinking this warm greeting was being given by a friend, a colleague, or a local shop owner who I'd known for years. This was the greeting I received by the Radiologist at my hospital, when I arrived for my … Continue reading MRI Marathon
For 8 days in November 2017 I lay in a hospital bed basically writhing in pain. Rewind to the beginning of that 8 day period and I was being rushed to hospital in an ambulance as my left leg, the one with the non union femur fracture, was like a wooden block and it would … Continue reading A Hospital Stay To Remember…..Or Perhaps Forget!!
I was loading my dishwasher this morning and fighting with a plate refusing to fit in. It wasn't really the plates fault. I was in severe lower back pain and trying to get the task over as quickly as possible. I was also trying to fit way too much into this particular load.....as you do!! … Continue reading “Where There’s A Will There’s A Way”….Is It Really That Easy?
(As published on The Mighty) What are the rules for living with a chronic illness or rare disease? Where can I find the rule book to help me manage, especially when all my symptoms are flaring and are "Off The Charts"? This is the question my husband and I have been contemplating over recent weeks. How do … Continue reading Where’s The “Off The Charts” Rule Book?
A cheerful look brings joy to the heart, and good news health to the bones. Proverbs 15:30 It's a gorgeous morning. The sun is shining, the birds are singing. I can hear neighbours chatting as they enjoy a morning walk and a cool gentle breeze is blowing through my bedroom window. I'm resting on my … Continue reading A Cheerful Approach To A Chronic Situation
Bigger isn't always better in life. I'm not talking about weight size or the size of your bank balance or home, I'm talking about bigger bones. If you research bone disease on "Dr Google" you'll find copious amounts of information about Osteoporosis, low bone density and the importance of having good healthy bones. Try researching high … Continue reading Bigger Isn’t Always Better In Life
It's so different from who I was physically but I'm still the same person with the same needs, same loves, same likes, same character.
Sometimes, all I need is a spoonful of strength. Living with a chronic disease reminds me of some of my previous plane trips. I’d start off full of nervous anticipation with a little fear of what lay ahead once on board. There were some smooth passages and then all of a sudden we’d hit almighty … Continue reading Calming Chronic Illness Turbulence With A Spoonful of Strength
