I wrote this blog post well before self isolation, quarantine and lockdown were common words in our vocabulary. As we enter a new world, dictated to us by COVID-19, my chronic illness life and the lives of so many disabled with chronic disease, may now be better understood. One of the ways those of us … Continue reading Home Sweet Home…My Chronic Illness/COVID-19 Sanctuary
The World is dealing with the unknown. We are all dealing with the unknown. Coronavirus, or COVID-19, is taking us on a journey we have never experienced before, certainly not in our lifetimes. Ultimately we are having to deal with change on a huge scale. Change causes fear and fear causes responses in ourselves and … Continue reading A World Changing Course – Entering The Unknown
"Shall we, shan't we?" "Do we need that? Should we part with those?" "Will this piece fit? Oh no, it will just look all wrong there!" A year ago, this conversation had been on a continuum between my husband and I for weeks. Yes, we were moving house and it was the reason why we … Continue reading Letting Go ~ Out With The Old, In With The New
A while ago I wrote a blog post titled "Hair Loss..It Does Matter Even If It Doesn't". I was starting out on my hair loss journey when I shared this chapter of my story. Back then, I was able to get hair cuts and use hair colour, to cover the early stages of alopecia. Fast … Continue reading Wigs, Hats, Scarves, Or Au Naturale?
You know how it feels to be watching a really sad movie, or reading an emotionally charged book, and you just need a break from it.....well, at the moment, I feel the same writing about chronic illness. In particular, I'm sick of my own sickness story. I need to push pause, change the channel, read … Continue reading A Case Of Chronic Illness Overload
I love that friends, family and even neighbours often think of me and ask how I am, or say they hope I am feeling better. It lets me know that I am cared for and not forgotten, even though my disease has pretty much caused me to live the life of a recluse over recent … Continue reading Not All Stories Can Be Champagne And Roses
As 2019 is coming to a close, I have been reflecting on my writing year. I've so enjoyed blogging plus writing articles for The Mighty So this blog post is simply to say "Thank you"! Thank you for reading. Thank you for sharing my work on Twitter, Pinterest and Facebook. Thank you for reaching out … Continue reading Thank You To All My Readers….My Top 2019 Blog Posts And Articles As Voted By You!!
When you've lived with chronic disease for a while, you'll inevitably arrive at a stage in your journey, where you feel you've come full circle. Perhaps, you feel you are constantly going around in circles. This is often the experience many patients have when first seeking a diagnosis. It can be a confusing and distressing … Continue reading Riding The Chronic Illness Carousel
When you've lived with Chronic Illness for a number of years, at some point, you adjust to a new way of living. You eventually find a new norm. While you might expect a few highs, lows and some disease flares along the way, generally life evolves into a settled and comfortable pattern. Until it suddenly, … Continue reading “Would You Like A Second Opinion?”… Surreal And Scary!
A while ago I took the plunge and made a hairdressers appointment to get a shorter cut. Sounds pretty normal doesn't it but for me it was huge! Over the past 5 years, since my leg broke and following each major surgery, my hair has been breaking off in chunks. Not sure if it's gone … Continue reading Hair Loss….It Does Matter, Even If It Doesn’t!!
My Medical Musings 