A Year Later…One Step, Two Steps…Will There Be A Third?

Some dates are forever etched in our memories. I have a few but there are two I will never forget. October 6th 2014 is the first. It was the day my femur broke.   It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that … Continue reading A Year Later…One Step, Two Steps…Will There Be A Third?

World Rare Disease Day – February 28th (A Guest Post By Gina Baker)

February 28th is an incredibly important day, especially for those of us working hard to raise awareness about rare diseases. February 28th is the global Rare Disease Day. On my support forum, Medical Musings with Friends, I have many members with rare diseases. Some of these diseases have names, some are so rare they are … Continue reading World Rare Disease Day – February 28th (A Guest Post By Gina Baker)

Your Ticket To A New Life…..(Let Go Of What You Think Life “Should” Look Like)

Happiness is letting go of what you think your life is supposed to look like, and celebrating it for everything that it is” – Mandy Hale What an insightful quote! There is so much simplicity to it, yet it is full of depth and wisdom.When we live with Chronic Illness, it’s very easy to fall … Continue reading Your Ticket To A New Life…..(Let Go Of What You Think Life “Should” Look Like)

Have Yourself A Merry Little “Chronic” Christmas

As Christmas Day fast approaches I imagine most of us, in the chronic illness community, are musing about what we want to realistically achieve over the holiday period. For those of us with Chronic Disease it can be an incredibly overwhelming time. Just trying to be happy for others, when your body is screaming at … Continue reading Have Yourself A Merry Little “Chronic” Christmas