A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
You may read this blog post title with a sense of bewilderment. You may be wondering where on earth am I going with this and what on earth has any of it got to do with chronic disease and disability! Well, in my world these three things, Carparks, a Recliner and a Telephone, have all … Continue reading Carparks, A Recliner And A Telephone
February 28th is an incredibly important day, especially for those of us working hard to raise awareness about rare diseases. February 28th is the global Rare Disease Day. On my support forum, Medical Musings with Friends, I have many members with rare diseases. Some of these diseases have names, some are so rare they are … Continue reading World Rare Disease Day – February 28th (A Guest Post By Gina Baker)
Happiness is letting go of what you think your life is supposed to look like, and celebrating it for everything that it is” – Mandy Hale What an insightful quote! There is so much simplicity to it, yet it is full of depth and wisdom.When we live with Chronic Illness, it’s very easy to fall … Continue reading Your Ticket To A New Life…..(Let Go Of What You Think Life “Should” Look Like)
As a New Year starts it’s usual to think about the year ahead and set goals, both for your personal and business life, and perhaps plan holidays or other adventures. I did for years. It’s summer in Australia and generally, Christmas to the end of January, is known as the holiday season. Schools are closed … Continue reading The Dreaded New Year Question!!
As Christmas Day fast approaches I imagine most of us, in the chronic illness community, are musing about what we want to realistically achieve over the holiday period. For those of us with Chronic Disease it can be an incredibly overwhelming time. Just trying to be happy for others, when your body is screaming at … Continue reading Have Yourself A Merry Little “Chronic” Christmas
Life isn't always fun. It will always have highs and lows. Times when we are ecstatic. Times when we are happy. Times when we are content. Times when we are melancholy. Times when we are bored. Times when we just have to deal with drudgery. I'm sitting in the "dealing with drudgery" category at the … Continue reading Dealing With Daily Drudgery
I love turning over the calendar at the beginning of a new month. I have a pretty wall calendar in my study, so I look forward to revealing a new picture on the morning of the 1st day. It’s a symbolic act in some regards, of saying goodbye to the old month, the good and … Continue reading COVID, Chaos and Calm
This week the world is mourning the death of Prince Philip, Duke of Edinburgh. Closer to home, I am mourning the death of my precious Dad. The Royal Family and I are worlds apart on so many levels, yet grief is something no one escapes in this life. At the end of the day we … Continue reading As The World Mourns…
On a hill far away stood an old rugged cross The emblem of suffering and shame And I love that old cross where the dearest and best For a world of lost sinners was slain So I'll cherish the old rugged cross Till my trophies at last I lay down And I will cling to … Continue reading Clinging To “The Old Rugged Cross”
As the Coronavirus pandemic continues to impact our lives globally, important personal milestones and celebrations still scatter our calendars. Events we looked forward to and perhaps been planning to celebrate long before COVID-19 became part of our daily vocabulary. Often these events, such as birthdays and anniversaries, or soon to arrive Easter, are opportunities for … Continue reading Easter Celebrations COVID Style
My Medical Musings 