Some dates are forever etched in our memories. I have a few but there are two I will never forget. October 6th 2014 is the first. It was the day my femur broke. It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that … Continue reading A Year Later…One Step, Two Steps…Will There Be A Third?
Life isn’t always straight forward. A bit of a cliche I know, but it’s so true!6 years ago I sat in pain with 2 broken legs, recovering from 2 major surgeries 8 weeks apart. I was facing a future filled with so many “unknown” elements.At that moment, “Life isn’t straight forward”, is what came to … Continue reading Living In Limbo
You may read this blog post title with a sense of bewilderment. You may be wondering where on earth am I going with this and what on earth has any of it got to do with chronic disease and disability! Well, in my world these three things, Carparks, a Recliner and a Telephone, have all … Continue reading Carparks, A Recliner And A Telephone
February 28th is an incredibly important day, especially for those of us working hard to raise awareness about rare diseases. February 28th is the global Rare Disease Day. On my support forum, Medical Musings with Friends, I have many members with rare diseases. Some of these diseases have names, some are so rare they are … Continue reading World Rare Disease Day – February 28th (A Guest Post By Gina Baker)
Happiness is letting go of what you think your life is supposed to look like, and celebrating it for everything that it is” – Mandy Hale What an insightful quote! There is so much simplicity to it, yet it is full of depth and wisdom.When we live with Chronic Illness, it’s very easy to fall … Continue reading Your Ticket To A New Life…..(Let Go Of What You Think Life “Should” Look Like)
As a New Year starts it’s usual to think about the year ahead and set goals, both for your personal and business life, and perhaps plan holidays or other adventures. I did for years. It’s summer in Australia and generally, Christmas to the end of January, is known as the holiday season. Schools are closed … Continue reading The Dreaded New Year Question!!
As Christmas Day fast approaches I imagine most of us, in the chronic illness community, are musing about what we want to realistically achieve over the holiday period. For those of us with Chronic Disease it can be an incredibly overwhelming time. Just trying to be happy for others, when your body is screaming at … Continue reading Have Yourself A Merry Little “Chronic” Christmas
Life isn't always fun. It will always have highs and lows. Times when we are ecstatic. Times when we are happy. Times when we are content. Times when we are melancholy. Times when we are bored. Times when we just have to deal with drudgery. I'm sitting in the "dealing with drudgery" category at the … Continue reading Dealing With Daily Drudgery
I love turning over the calendar at the beginning of a new month. I have a pretty wall calendar in my study, so I look forward to revealing a new picture on the morning of the 1st day. It’s a symbolic act in some regards, of saying goodbye to the old month, the good and … Continue reading COVID, Chaos and Calm
This week the world is mourning the death of Prince Philip, Duke of Edinburgh. Closer to home, I am mourning the death of my precious Dad. The Royal Family and I are worlds apart on so many levels, yet grief is something no one escapes in this life. At the end of the day we … Continue reading As The World Mourns…