A friend recently posted a question in a Facebook Group, about ways to gain freedom in life, so you can choose how you want to live it. "What has most helped you to gain freedom in your life to choose exactly how you want to live it?" Jayne Bailey My response was one word. Acceptance. … Continue reading Is Acceptance Just Resignation?
I was sitting at our local cafe this week, which is situated on a Point overlooking the Bay and beautiful Islands beyond. It really couldn't be more idyllic and I am blessed to live so close to such a gorgeous place on Australia's east coast. As my husband and I were sipping our cool drinks … Continue reading The Tides of Chronic Illness
I really wasn't sure if I wanted to reflect on 2017. Was it worth reflecting on my life with chronic disease? Did I achieve anything? Did I want to relive what at times felt like days and months of overwhelming pain? One of my coping mechanisms, that helps me live well with my rare disease, … Continue reading Reflect and Restart
How often do you find yourself reaching for the phone, to send a text or email the moment something happens in your life? How often do you stop and pray first, asking God for strength and wisdom or thanking Him for the blessing? Does a Facebook post often take precedence over spending time reflecting in … Continue reading Meditate on These Things
I have just had the night from hell. Pain has soared through every bone, muscle and joint in my body as my bone disease attacks from every angle. I woke from a deep sleep screaming at 2am, causing my husband to jolt upright and run to my side. I couldn't move any limb. I was … Continue reading Joy in the Morning
Living with a Chronic Disease, can at times, feel isolating and an ongoing test of endurance. You never know what great mountain awaits you when you first open your eyes every morning. That's providing you were able to sleep in the first place of course, as pain and discomfort so often try to envelope you … Continue reading Acts of Kindness
I've had a week of surprises. I should be used to the unexpected by now and generally I am. I take the shocks and twists and turns my body throws at me in my stride most days, most weeks. This week felt different though. Two weeks ago I felt a snap in my left foot. … Continue reading From Chaos to Calm
Oh how I love this time of the year! Carols playing, tree decorating, wrapping presents with beautiful paper and ribbons, christmas cake and pudding and yummy mince pies. As I think about this season and the memories it conjures up in my mind, I can't help but contrast my current Christmas to my Christmases past. … Continue reading Faith, Hope and Love – Merry Christmas
I left my Orthopaedic Surgeons office yesterday with a spring in my step which is quite an achievement on two crutches. I have been given a leave pass. A holiday. A break. A good break, not a leg break 🙂 6 months of no leg xrays, surgery or appointments with my Surgeon. He is giving … Continue reading A Break of a Different Kind
I've made mention of my Colostomy (fondly named Rudolph) throughout my blog, but I realised that I've never really told the full story of why I have a stoma. Since 2014 my life has been overtaken by the story of my broken femur and subsequent genetic bone disease diagnosis. In many regards my stoma has … Continue reading My Stoma Story
My Medical Musings 