For two years, before medically retiring, I was still holding out hope of being able to return to work eventually, despite being on Income Protection and battling one health hurdle after the other. The realist in me knew I was facing a very different life, as I began to lose my ability to walk any … Continue reading The Best Disability Advice I Ever Received Was Not What I Expected!
Ultimately, it doesn’t matter what day it is.It matters that I make the most of every single day and make the moments within the day count. It matters that I don’t waste time being discontent about my circumstances.
As a patient advocate, I am often called, inspiring, motivating, and full of strength despite my adversities. The truth is that most days, I am just treading water.
There is always the temptation, when appointments or commitments are cancelled, to fill the time with other things. I know I can't, even though my head is always full of great ideas. My body is screaming at me. I have to listen to it.
Love the Royal family or not, if you live in the UK or a Commonwealth country like Australia, Saturday May 6th is the Coronation of our new King Charles III. I can't think of a better way to mark this historic event than enjoying a high tea with my husband watching the pomp and ceremony chronic illness style.…. cucumber sandwiches, ham sandwiches, Devonshire scones etc and of course all on my best china!
There is something strangely calming about putting on the kettle, taking out a pretty china cup or mug, anticipating sitting in a comfy chair, and slowly sipping this hot delight.
I don’t want to be a prisoner to my disease. I want to scale whatever heights I can safely push, and ultimately I’m the only one who can decide my limits.
For someone with a body failing at every opportunity, the joy and hope Easter offers is one day I will have a new life in heaven and a new body. Imagine no more sorrow or pain. How beautiful and what amazing grace to receive such a gift. At Christmas, we so easily celebrate the birth … Continue reading A Messy Easter
Life is short. It's precious, and it's fragile while being incredibly resilient and strong. My home is my safe place, and I'm convinced because I love it, and I love my husband, it's the place that helps me heal in a way I never do in hospital.
**Includes Health Update** I decided I wanted a name that points to life, hope, and renewal. Something that makes me smile when I say it and gives me a sense of light heartedness.
My Medical Musings 