I’ve been indulging in Christmas Movies over the past couple of weeks. They've been the perfect distraction from my disease progression and escalating pain levels. They never used to be my thing but the more I watch, the more I fall in love with the beautiful locations they are filmed in, the Christmas scenes and … Continue reading Christmas Connections
Every now and again it’s really good to stop and take stock.The end of the year, and the lead up to Christmas, is a perfect time to let go of a few things and make some space to slow down a little.After all, it is supposed to be the season of “Comfort and Peace”, as … Continue reading Blogging Off Until 2023…But First A Look At My Writing Year In Review
Have you looked at your Calendar at the start of a month and thought to yourself, ” What on earth was I thinking. I can’t possibly do all that!” I’m sure I’m not alone in this exclamation. As I scrolled through my calendar on my phone for the month ahead, I felt physically sick. It was … Continue reading Taking Control Over My Calendar Catastrophe …Time For Some Annual Leave!
I don’t generally suffer from anxiety. It doesn’t mean I don’t get stressed. Of course I do. We all do. My overall health situation can cause significant stress, on occasions, but I accept it is what it is, and I’m continually finding ways to adjust my life to accomodate it. Pain, when it’s at unrelenting … Continue reading Dancing To The Beat of My Own Drum..Chronic Illness Style!
Hi Everyone, I recently wrote a letter to the members of my support forum, Medical Musings with Friends . I wanted to apologise for being so quiet with replying to their comments on the forum, and not commenting on posts in general lately. I've managed to schedule daily segments to encourage community and discussion, but … Continue reading A Personal Letter from Sam….My Health and Life Update and an Apology.
If you constantly question your reality and worry about the future, you are not alone. Last year I was honoured to be invited to team with The Mighty to write an email newsletter, focusing on dealing with the “What If’s” of Life. I agreed in the hope my experience of living with a rare progressive disease, along … Continue reading Right Now I’m Thinking…What If?
I am so excited to share part two of my interview with Melissa on her podcast, "I Am Not My Pain Podcast". In case you missed part one, which includes my introduction to Melissa and how we met, here is the link to my blog post containing everything you need to know, including the Podcast … Continue reading Part Two of My Interview as a Guest on, “I Am Not My Pain Podcast”, with Host Melissa Adams
Sometimes, all I need is a teaspoon of hope in the form of mini miracles.Living with a chronic disease reminds me of some of my previous plane trips. I’d start off full of nervous anticipation, with a little fear of what lay ahead once on board. There were some smooth passages and then all of … Continue reading Don’t Miss the Mini Gifts and Miracles in Your Life
I'm so excited to share with you my interview as a Guest on "I Am Not My Pain Podcast. This is part one, of a two part interview. I was so honoured to be invited by Melissa to talk about my health story, my blog, my book, my forum and even more importantly, how I … Continue reading My Interview as a Guest on, “I Am Not My Pain Podcast” …..With Host Melissa Adams
Some dates are forever etched in our memories. I have a few but there are two I will never forget. October 6th 2014 is the first. It was the day my femur broke. It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that … Continue reading A Year Later…One Step, Two Steps…Will There Be A Third?
My Medical Musings 