At the start of a new week or month, I have a, “Celebrations Milestones and Memories” segment on my Facebook Forum, Medical Musings with Friends. The idea is to take a quiet moment, to think about what lies ahead. We muse about how we are feeling, what we are concerned about, what we are excited about. … Continue reading Managing The Chronic Disease Curveball
A cheerful look brings joy to the heart, and good news health to the bones. Proverbs 15:30 It's a gorgeous morning. The sun is shining, the birds are singing. I can hear neighbours chatting as they enjoy a morning walk and a cool gentle breeze is blowing through my bedroom window. I'm resting on my … Continue reading A Cheerful Approach To A Chronic Situation
Every morning I wake up thinking, “Today will be a better day” Everyday, for more years than I care to count, I finish the day feeling battle weary. Every night I close my eyes to sleep, clinging to the hope that sleep will be renewing and I will wake up feeling refreshed. Every night I … Continue reading Maybe Tomorrow Will Be Better….Clinging To Hope
What if? What if my pain is worse tomorrow? What if I can’t sleep? What if I have a reaction to my new medication? What if my condition worsens? What if I contract COVID-19? What if my friends or family won’t understand why I need to continue to self isolate when pandemic restrictions are lifted? … Continue reading Sending The “What Ifs” Of Life Packing
I wrote this blog post well before self isolation, quarantine and lockdown were common words in our vocabulary. As we enter a new world, dictated to us by COVID-19, my chronic illness life and the lives of so many disabled with chronic disease, may now be better understood. One of the ways those of us … Continue reading Home Sweet Home…My Chronic Illness/COVID-19 Sanctuary
"Shall we, shan't we?" "Do we need that? Should we part with those?" "Will this piece fit? Oh no, it will just look all wrong there!" A year ago, this conversation had been on a continuum between my husband and I for weeks. Yes, we were moving house and it was the reason why we … Continue reading Letting Go ~ Out With The Old, In With The New
A while ago I wrote a blog post titled "Hair Loss..It Does Matter Even If It Doesn't". I was starting out on my hair loss journey when I shared this chapter of my story. Back then, I was able to get hair cuts and use hair colour, to cover the early stages of alopecia. Fast … Continue reading Wigs, Hats, Scarves, Or Au Naturale?
I love that friends, family and even neighbours often think of me and ask how I am, or say they hope I am feeling better. It lets me know that I am cared for and not forgotten, even though my disease has pretty much caused me to live the life of a recluse over recent … Continue reading Not All Stories Can Be Champagne And Roses
Disappointments come to us all. They are part of life. As hard as they are to endure they can make the special moments in life seem even more precious. They also often teach us valuable life lessons. Despite that knowledge, we still need to live through life's disappointments. We need to find ways to survive … Continue reading Dealing With Disease And Disappointment
I wrote this article in February 2018. I was just starting to write a new article this week, on a similar theme, and realised this one says it all. The title I had in mind for a new blog post was “Accept and Adjust”. Accepting our chronic disease isn’t enough. We need to take the … Continue reading Is Acceptance Just Resignation?
My Medical Musings 