The Non Negotiable Chronic Illness Rule

I love life's little challenges. I love problem solving and turning obstacles into opportunities. I love putting a positive spin on what would otherwise be a very negative situation. I've always done this, both in my personal and my working life. So, chronic disease really wasn't going to change my approach to finding a way … Continue reading The Non Negotiable Chronic Illness Rule

It’s Time To Let Go Of What You Think Life “Should” Look Like!

"Happiness is letting go of what you think your life is supposed to look like, and celebrating it for everything that it is" – Mandy Hale What an insightful quote! There is so much simplicity to it yet it is full of depth and wisdom. When we live with Chronic Illness, it's very easy to … Continue reading It’s Time To Let Go Of What You Think Life “Should” Look Like!

Healing Comes In Many Forms…..Even With A Progressive Disease

Some dates are forever etched in our memories. I have a few but one is a day I will never forget October 6th 2014. It’s the day my femur broke.   It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that even Specialists would … Continue reading Healing Comes In Many Forms…..Even With A Progressive Disease

As I Lay Me Down To Sleep….Who Am I Kidding!!

Sometimes laughter is the best medicine, especially when chronic illness turns the simple act of going to bed, into a circus act. I'm no poet, but as my husband and I recovered from last night's antics over our morning coffee, our conversation ignited a tiny bit of poetic creativity: As I lay me down to … Continue reading As I Lay Me Down To Sleep….Who Am I Kidding!!

Home Sweet Home…My Chronic Illness/COVID-19 Sanctuary

I wrote this blog post well before self isolation, quarantine and lockdown were common words in our vocabulary. As we enter a new world, dictated to us by COVID-19, my chronic illness life and the lives of so many disabled with chronic disease, may now be better understood. One of the ways those of us … Continue reading Home Sweet Home…My Chronic Illness/COVID-19 Sanctuary