Healing Comes In Many Forms…..Even With A Progressive Disease

Some dates are forever etched in our memories. I have a few but one is a day I will never forget October 6th 2014. It’s the day my femur broke.   It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that even Specialists would … Continue reading Healing Comes In Many Forms…..Even With A Progressive Disease

As I Lay Me Down To Sleep….Who Am I Kidding!!

Sometimes laughter is the best medicine, especially when chronic illness turns the simple act of going to bed, into a circus act. I'm no poet, but as my husband and I recovered from last night's antics over our morning coffee, our conversation ignited a tiny bit of poetic creativity: As I lay me down to … Continue reading As I Lay Me Down To Sleep….Who Am I Kidding!!

The Joy Of Journaling

It’s no secret I love writing. Throughout my career the thing I loved the most was communication, both written and verbal. To me communication is about connecting, making connections, renewing connections, allowing people into my life. It's certainly been my goal with blogging and writing articles, for a number of publications, including The Mighty My … Continue reading The Joy Of Journaling

Home Sweet Home…My Chronic Illness/COVID-19 Sanctuary

I wrote this blog post well before self isolation, quarantine and lockdown were common words in our vocabulary. As we enter a new world, dictated to us by COVID-19, my chronic illness life and the lives of so many disabled with chronic disease, may now be better understood. One of the ways those of us … Continue reading Home Sweet Home…My Chronic Illness/COVID-19 Sanctuary