Healing Comes In Many Forms…..Even With A Progressive Disease

Some dates are forever etched in our memories. I have a few but one is a day I will never forget October 6th 2014. It’s the day my femur broke.   It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that even Specialists would … Continue reading Healing Comes In Many Forms…..Even With A Progressive Disease

As I Lay Me Down To Sleep….Who Am I Kidding!!

Sometimes laughter is the best medicine, especially when chronic illness turns the simple act of going to bed, into a circus act. I'm no poet, but as my husband and I recovered from last night's antics over our morning coffee, our conversation ignited a tiny bit of poetic creativity: As I lay me down to … Continue reading As I Lay Me Down To Sleep….Who Am I Kidding!!

Home Sweet Home…My Chronic Illness/COVID-19 Sanctuary

I wrote this blog post well before self isolation, quarantine and lockdown were common words in our vocabulary. As we enter a new world, dictated to us by COVID-19, my chronic illness life and the lives of so many disabled with chronic disease, may now be better understood. One of the ways those of us … Continue reading Home Sweet Home…My Chronic Illness/COVID-19 Sanctuary