A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
My beautiful Dad passed away 5 months ago. The initial weeks after his passing saw me encompassed in raw grief. The kind of grief constantly creeping up on you, and opening the flood gate of tears, when you least expect it. The kind of grief where you grapple to make sense of it all. When you … Continue reading It’s Father’s Day…..”Good Grief!”
Every now and again it’s really good to stop and take stock. Stress is the last thing those of us with Chronic Illness need. It only enhances our pain and symptoms. Time To Step Aside For A While As my readers know my health continues to deteriorate and as a result I'm incredibly exhausted. I … Continue reading Stepping Aside For September
I love life's little challenges. I love problem solving and turning obstacles into opportunities. I love putting a positive spin on what would otherwise be a very negative situation. I've always done this, both in my personal and my working life. So, chronic disease really wasn't going to change my approach to finding a way … Continue reading The Non Negotiable Chronic Illness Rule
I can remember as clearly as if it was yesterday, sitting in the dining room of our family home, staring at the plaque on the wall. We’d had it for years and the words always provided me with a sense of comfort and security. Now faith is the substance of things hoped for, the evidence … Continue reading Hope, Faith And Our Need For Dreams To Come True
"Happiness is letting go of what you think your life is supposed to look like, and celebrating it for everything that it is" – Mandy Hale What an insightful quote! There is so much simplicity to it yet it is full of depth and wisdom. When we live with Chronic Illness, it's very easy to … Continue reading It’s Time To Let Go Of What You Think Life “Should” Look Like!
Some dates are forever etched in our memories. I have a few but one is a day I will never forget October 6th 2014. It’s the day my femur broke. It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that even Specialists would … Continue reading Healing Comes In Many Forms…..Even With A Progressive Disease
A cheerful look brings joy to the heart, and good news health to the bones. Proverbs 15:30 It's a gorgeous morning. The sun is shining, the birds are singing. I can hear neighbours chatting as they enjoy a morning walk and a cool gentle breeze is blowing through my bedroom window. I'm resting on my … Continue reading A Cheerful Approach To A Chronic Situation
Sometimes laughter is the best medicine, especially when chronic illness turns the simple act of going to bed, into a circus act. I'm no poet, but as my husband and I recovered from last night's antics over our morning coffee, our conversation ignited a tiny bit of poetic creativity: As I lay me down to … Continue reading As I Lay Me Down To Sleep….Who Am I Kidding!!
I wrote this blog post well before self isolation, quarantine and lockdown were common words in our vocabulary. As we enter a new world, dictated to us by COVID-19, my chronic illness life and the lives of so many disabled with chronic disease, may now be better understood. One of the ways those of us … Continue reading Home Sweet Home…My Chronic Illness/COVID-19 Sanctuary
I love that friends, family and even neighbours often think of me and ask how I am, or say they hope I am feeling better. It lets me know that I am cared for and not forgotten, even though my disease has pretty much caused me to live the life of a recluse over recent … Continue reading Not All Stories Can Be Champagne And Roses
