Hi Everyone, Since I last posted, our lives have been turned upside down. I think the best way to bring you the simplest update is to list the events, and then I'll chat about key issues. Here goes..... Let's start with good news: Peter had his ACAT assessment last week for 7⁷⁷Level 4 Aged Care … Continue reading Where Do I Start? A Diagnosis of Myositis and So Much Is Happening …. But I Will Try An Update!
Category: MRI
Along Came Alzheimers…And A Much Needed Holiday At Home
We need a holiday, but routine and familiarity are important for anyone living with Alzheimers, so going away is not an option.
I Can’t Believe It…My Latest Lumbar X-Ray Uncovers a Missing Diagnostic Link in My Story!
Everything I've experienced now makes so much sense. I now know why, and for some reason, that knowledge removes its power over me. It's part of me rather than being something attacking me from nowhere.
Twists, Turns and Treading Water
As a patient advocate, I am often called, inspiring, motivating, and full of strength despite my adversities. The truth is, most days, I am just treading water.
Taking Time To Reflect
Turning off Netflix and listening to the silence filling the room, can be so relaxing. Suddenly the birds outside can be heard tweeting, rather than Twitter chirping at you with a notification on your phone.
What To Do When You Don’t Know What To Do!
(Including a Health Update) Sometimes the path ahead in life can seem a little unclear. Sometimes we are faced with a range of life choices, almost too many, which often complicate matters and require a great deal of thought….too much thought!! Sometimes we have limited choices, none of which are particularly helpful, so instead of … Continue reading What To Do When You Don’t Know What To Do!
The Non Negotiable Chronic Illness Rule
I love life's little challenges. I love problem solving and turning obstacles into opportunities. I love putting a positive spin on what would otherwise be a very negative situation. I've always done this, both in my personal and my working life. So, chronic disease really wasn't going to change my approach to finding a way … Continue reading The Non Negotiable Chronic Illness Rule
MRI Marathon
"Hello, you're back again, so nice to see you, how are you?" You'd be forgiven for thinking this warm greeting was being given by a friend, a colleague, or a local shop owner who I'd known for years. This was the greeting I received by the Radiologist at my hospital, when I arrived for my … Continue reading MRI Marathon
A Spine Tingling Saga
Saga by definition means, a long story of heroic achievement or, a long story full of incidents. This story is definitely the latter, no heroics to be found I assure you. Rewind three weeks ago and I woke up to find I couldn't turnover in bed. I had pain in my right lower back that … Continue reading A Spine Tingling Saga
There is some Good News!!
Finally there is some good news!! I saw my Orthopaedic Surgeon yesterday to review my latest x-rays and discuss the increased pain in my left non union broken femur. So wait for it.....My leg seems to be suddenly attempting to make new bone at the break site, despite the bone graft my Surgeon performed 5 months ago … Continue reading There is some Good News!!










