A Life Of Love, Laughter, Faith And Hope, As I Learn To Live Again With A Rare Disease
One of the things I have always loved is Interior Design. After working crazy hours, when I was able to work, I would like nothing better than to spend the weekend at home. It's always been my happy place. As a young girl I loved creating a new look in my bedroom regularly, using different … Continue reading Interior “Disability” Design
Bigger isn't always better in life. I'm not talking about weight size or the size of your bank balance or home, I'm talking about bigger bones. If you research bone disease on "Dr Google" you'll find copious amounts of information about Osteoporosis, low bone density and the importance of having good healthy bones. Try researching high … Continue reading Bigger Isn’t Always Better In Life
The term "Rare Disease" suggests unknown territory, complications and no easy answers. That terminology definitely describes my rare bone disease. My Orthopaedic Specialist appointment today didn't fully deliver on my great expectations but on some levels it did. It certainly delivered a sense of direction and further understanding of what it means to live with … Continue reading Accepting Reality
It's nearly 3 years since my left femur snapped in two. Those first two years I can barely remember. It's a blur of surgery after surgery, hospital stay after hospital stay, recovery after recovery. Actually recovery is probably the wrong word because I haven't recovered. My left femur is still broken. It's officially diagnosed as … Continue reading The Next “Leg” of My Journey
Finally there is some good news!! I saw my Orthopaedic Surgeon yesterday to review my latest x-rays and discuss the increased pain in my left non union broken femur. So wait for it.....My leg seems to be suddenly attempting to make new bone at the break site, despite the bone graft my Surgeon performed 5 months ago … Continue reading There is some Good News!!
Twas the night before Bone Marrow biopsy and all through the hospital the patients were stirring demanding a nurse... That's about as poetic as I can get tonight. Tomorrow is a big day and the day after is even bigger. My stint in hospital 2 weeks ago resulted in an MRI on my right femur … Continue reading Twas the Night Before Biopsy
I saw my Orthopaedic Surgeon yesterday & I am having more surgery on Tuesday the 20th October on my leg. This is to swap the screw in the intramedullary rod in my leg from a static screw to a dynamic screw to jolt the femur into healing activity. Surgery was going to be today but … Continue reading Bone Stimulator to the Rescue!!
