October 6th 2014. A day I will never forget. It's the day my femur broke. (Click on the link to read about that extraordinary day) It was a life changing day. A day that would start me on a journey with a rare bone disease, so rare that even Specialists would stand and scratch their heads … Continue reading Healing Comes In Many Forms…..Even With A Broken Body
My title might suggest a study in economics but rest assured it is not where I am heading with this. The Law of Diminishing Returns Refers to a point at which the level of benefits gained is less than the amount of money or energy invested. When you live with chronic illness, over time your … Continue reading The “Chronic Illness” Law of Diminishing Returns
As a little girl, around the age of 5 or 6, my parents taught me how to answer our home phone. I can still remember my answering script to this day. I would eagerly rush to the ringing phone and in my brightest, best grown up voice possible, I would say: " Hello, 1234567, can … Continue reading I’m Good….My Body, Not So Much
The term "Rare Disease" suggests unknown territory, complications and no easy answers. That terminology definitely describes my rare bone disease. My Orthopaedic Specialist appointment today didn't fully deliver on my great expectations but on some levels it did. It certainly delivered a sense of direction and further understanding of what it means to live with … Continue reading Accepting Reality
Bigger isn't always better in life. I'm not talking about weight size or the size of your bank balance or home, I'm talking about bigger bones. If you research bone disease on "Dr Google" you'll find copious amounts of information about Osteoporosis, low bone density and the importance of having good healthy bones. Try researching high … Continue reading Bigger Isn’t Always Better In Life
It's nearly 3 years since my left femur snapped in two. Those first two years I can barely remember. It's a blur of surgery after surgery, hospital stay after hospital stay, recovery after recovery. Actually recovery is probably the wrong word because I haven't recovered. My left femur is still broken. It's officially diagnosed as … Continue reading The Next “Leg” of My Journey
Finally there is some good news!! I saw my Orthopaedic Surgeon yesterday to review my latest x-rays and discuss the increased pain in my left non union broken femur. So wait for it.....My leg seems to be suddenly attempting to make new bone at the break site, despite the bone graft my Surgeon performed 5 months ago … Continue reading There is some Good News!!